Latest News

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April 10-12 – FHF Patient Advocate Training

The FH Foundation Advocates for Awareness Training will be held April 10-12 in Pasadena, CA. Our next group of dedicated FH Advocates will come together to prepare to tell their stories to raise awareness of FH across the United States. Sharing the personal experiences of people living with FH is one of the most powerful … Read More


Initial Findings from the CASCADE FH Registry

The initial findings from the FH Foundation’s CASCADE FH Registry were presented at ACC.15: American College of Cardiology Scientific Session 2015 in San Diego on March 14, 2015. The poster of the co-authored abstract “Initial Results from the CASCADE-FH Registry: CAscade Screening for Awareness and Detection … Read More


The Cards I Was Dealt – My Life With Familial Hypercholesterolemia by Mackenzie Ames, BA

We are proud to share this Patient Viewpoint written by FH Foundation Advocate for Awareness, Mackenzie Ames, for the American Heart Association’s Circulation: Cardiovascular Quality and Outcomes, published today.  Mackenzie shares her journey to diagnosis as well as the frustrations and successes along the way.  … Read More

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Familial hypercholesterolemia: Underdiagnosed, risks underappreciated; new treatments on horizon – Cardiology Today

In honor of Heart Month, Cardiology Today chose familial hypercholesterolemia (FH) for its cover story. Not long ago FH was hidden in the shadows, now it is featured on the cover of one of America’s most widely circulated cardiology journals. The article explores not only the devastating consequences of this … Read More

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Familial Hypercholesterolemia on The Doctors

We are pleased to share the FH Foundation’s founder’s segment regarding FH on CBS’s The Doctors TV Show, which aired on February 26, 2015. Katherine Wilemon sheds lights on the significance of early diagnosis and treatment of FH through sharing her own struggles with this heritable disorder. Her story … Read More