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Left: Athanasios Pallidis (Greek FH Association) Right: Christian Jacobs (FH Foundation)

2014 FH Global Summit thoughts from Christian Jacobs, FH Foundation Board Member and HoFH Advocate for Awareness

It truly is amazing to think that The FH Foundation was formed just three years ago and now here we are wrapping up the Second Annual FH Global Summit. As a patient, it is exciting and encouraging to see physicians, researchers, pharmaceutical companies, patients, and caregivers come together to help push forward in … Read More

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Four Truths About Cholesterol Testing In Children

The other day, a concerned mother approached me at school questioning the need for testing cholesterol levels in kids. She admitted that she wanted to skip the cholesterol test the pediatrician had scheduled for her ten-year-old daughter. After all, she explained, “my daughter is not overweight.” It was not the … Read More

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Million Dollar Bike Ride : an experience to say the least

The first annual Million Dollar Bike Ride took place on May 3rd, 2014, and from what I witnessed, it was a true success. With over $1.4 million raised in order to fund rare disease research, I was proud to be there and participate. Being there with my good friend and fellow advocate Scott, representing the FH Foundation, … Read More

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Everyday Health writes about Katherine’s story and the work of the FH Foundation

Katherine Wilemon, Founder, President and CEO of the FH Foundation, was diagnosed with familial hypercholesterolemia only after she had a heart attack at the age of 38. Unfortunately, this is a common scenario for people with FH. Katherine shared her long journey to diagnosis with EverydayHealth.com and explained why … Read More

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What is Autosomal Dominant Genetic Disorder?

Genetic disorders are diseases caused by abnormalities in an individual’s genetic structure. Many of them are passed down from parent to child. There are many different types of genetic disorders–a genetic disorder may be caused by a mutation in a section of the gene, an absence or alteration in an entire chromosome, … Read More