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The Cards I Was Dealt – My Life With Familial Hypercholesterolemia by Mackenzie Ames, BA

We are proud to share this Patient Viewpoint written by FH Foundation Advocate for Awareness, Mackenzie Ames, for the American Heart Association’s Circulation: Cardiovascular Quality and Outcomes, published today.  Mackenzie shares her journey to diagnosis as well as the frustrations and successes along the way.  … Read More

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Familial hypercholesterolemia: Underdiagnosed, risks underappreciated; new treatments on horizon – Cardiology Today

In honor of Heart Month, Cardiology Today chose familial hypercholesterolemia (FH) for its cover story. Not long ago FH was hidden in the shadows, now it is featured on the cover of one of America’s most widely circulated cardiology journals. The article explores not only the devastating consequences of this … Read More


New Treatment on the Horizon – What is a PCSK9 Inhibitor?

Living well with FHStories and insights from people living with Familial Hypercholesterolemia (FH)New Treatment on the Horizon – What is a PCSK9 Inhibitor?by Cat Davis AhmedThis is a hopeful time in the field of Familial Hypercholesterolemia (FH).  Developments in both treatment and in the effort to diagnose … Read More

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Today, Jan 29, 2015 is a very important day…

Today is a very important day for over 1.5 million Americans and most of them do not know it.  They are unaware they have a life-threatening genetic condition, familial hypercholesterolemia (FH). If left untreated, people living with FH have a 20 times increased risk of premature heart disease and heart attacks.  … Read More

IMPROVE-IT Study Results: An Incremental Improvement

The results of the IMPROVE-IT trial were finally revealed this November during the American Heart

Association (AHA) Scientific Sessions in Chicago. The trial itself remains highly controversial, and its long-

awaited results may set precedence for new therapies in the future and possibly even changes to the clinical … Read More