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FH Advocates for Awareness 2015

FH Advocates for Awareness Training

The newest FH Advocates for Awareness gathered in Pasadena (home of the FH Foundation) on April 10-12 for our latest Training Workshop. These inspiring volunteers spent the weekend learning about the science of FH, the work of the FH Foundation, and how to raise awareness of all forms of FH across the US and in their … Read More

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April 10-12 – FHF Patient Advocate Training

The FH Foundation Advocates for Awareness Training will be held April 10-12 in Pasadena, CA. Our next group of dedicated FH Advocates will come together to prepare to tell their stories to raise awareness of FH across the United States. Sharing the personal experiences of people living with FH is one of the most powerful … Read More

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Initial Findings from the CASCADE FH Registry

The initial findings from the FH Foundation’s CASCADE FH Registry were presented at ACC.15: American College of Cardiology Scientific Session 2015 in San Diego on March 14, 2015. The poster of the co-authored abstract “Initial Results from the CASCADE-FH Registry: CAscade Screening for Awareness and Detection … Read More

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The Cards I Was Dealt – My Life With Familial Hypercholesterolemia by Mackenzie Ames, BA

We are proud to share this Patient Viewpoint written by FH Foundation Advocate for Awareness, Mackenzie Ames, for the American Heart Association’s Circulation: Cardiovascular Quality and Outcomes, published today.  Mackenzie shares her journey to diagnosis as well as the frustrations and successes along the way.  … Read More

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Familial hypercholesterolemia: Underdiagnosed, risks underappreciated; new treatments on horizon – Cardiology Today

In honor of Heart Month, Cardiology Today chose familial hypercholesterolemia (FH) for its cover story. Not long ago FH was hidden in the shadows, now it is featured on the cover of one of America’s most widely circulated cardiology journals. The article explores not only the devastating consequences of this … Read More