The FH Foundation is a patient-centered non-profit dedicated to research, advocacy, and education of all forms of familial hypercholesterolemia


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New Drug Sharply Lowers Cholesterol, but It’s Costly – NY Times

“[PCSK9 inhibitors] represent a new era of hope for us,” said Katherine Wilemon, founder and president of the FH Foundation, an advocacy group. “We tend to take everything out there that is available, and even with that we can’t get our LDL levels down to a ‘safe’ level.”Ms. Wilemon, whose organization … Read More


New Therapy Approved by the FDA, New Hope for FH Patients

Today families living with familial hypercholesterolemia (FH) have new hope that they can win the fight against aggressive premature heart disease.  Individuals with FH need all the help they can get to manage this risk factor encoded in their genes. Fortunately, more help is on the way for those who need it.The Food … Read More


FDA PCSK9 Hearing

News of the Week for Many, News of a Lifetime for Those With FHThe FDA Advisory Committee’s decision June 9th and 10th to recommend the approval of two novel LDL-lowering treatments (known as PCSK9 inhibitors) was the news of the week for many. But for people living with familial hypercholesterolemia, it was the … Read More


Representing the HoFH Community at EMDAC

“You really made a difference by coming today,” Deborah McCall, a member of the US Food and Drug Administration (FDA) advisory committee said. She was referring to Colleen McCready, a FH advocate, and the other individuals with FH in attendance at the hearing.   It was the second day of the FDA Endocrinologic … Read More

Scott and Kids

FH: A Parent with a Dream

Scott Radabaugh has become one of the most active faces in the familial hypercholesterolemia (FH) community. This past year he has had multiple stories written about him, assisted in the FH Foundation’s Advocates for Awareness training, sent out over a thousand letters to cardiac rehabilitation centers regarding FH, … Read More