The FH Foundation is a patient-centered non-profit dedicated to research, advocacy, and education of all forms of familial hypercholesterolemia



FDA PCSK9 Hearing

News of the Week for Many, News of a Lifetime for Those With FHThe FDA Advisory Committee’s decision June 9th and 10th to recommend the approval of two novel LDL-lowering treatments (known as PCSK9 inhibitors) was the news of the week for many. But for people living with familial hypercholesterolemia, it was the … Read More


Representing the HoFH Community at EMDAC

“You really made a difference by coming today,” Deborah McCall, a member of the US Food and Drug Administration (FDA) advisory committee said. She was referring to Colleen McCready, a FH advocate, and the other individuals with FH in attendance at the hearing.   It was the second day of the FDA Endocrinologic … Read More

Scott and Kids

FH: A Parent with a Dream

Scott Radabaugh has become one of the most active faces in the familial hypercholesterolemia (FH) community. This past year he has had multiple stories written about him, assisted in the FH Foundation’s Advocates for Awareness training, sent out over a thousand letters to cardiac rehabilitation centers regarding FH, … Read More


FDA EMDAC Meeting – The Patient Voice

On June 9 and 10, members of the familial hypercholesterolemia (FH) Foundation and FH community had the opportunity to share their stories at the U.S. Food & Drug Administration (FDA) Endocrinologic & Metabolic Drugs Advisory Committee (EMDAC) meeting in Washington, D.C. This historic meeting focused on a new … Read More

stacey speech2

Cardiology Society Congress – Brazil

Stacey Lane, an FH Foundation board member, presented at a satellite symposium during the Cardiology Society Congress of São Paulo State on June 6th, where she discussed her experiences as an FH patient and the activities of the FH Foundation. While there, she also met with members of the AHF, the newly formed Brazilian … Read More