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Everyday Health writes about Katherine’s story and the work of the FH Foundation

Katherine Wilemon, Founder, President and CEO of the FH Foundation, was diagnosed with familial hypercholesterolemia only after she had a heart attack at the age of 38. Unfortunately, this is a common scenario for people with FH. Katherine shared her long journey to diagnosis with and explained why … Read More


What is Autosomal Dominant Genetic Disorder?

Genetic disorders are diseases caused by abnormalities in an individual’s genetic structure. Many of them are passed down from parent to child. There are many different types of genetic disorders–a genetic disorder may be caused by a mutation in a section of the gene, an absence or alteration in an entire chromosome, … Read More


Cascade Screening for Familial Hypercholesterolemia

Familial hypercholesterolemia is an autosomal dominant disorder that affects the way that the blood handles cholesterol, resulting in abnormally high concentrations of LDL cholesterol in the blood. This can have serious consequences because it leads to coronary heart disease, heart attacks, and other heart problems … Read More

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ICD-10 Coordination and Maintenance Committee hears public comments on including distinct diagnostic codes for FH

On March 19, representatives from The FH Foundation were at the Centers for Disease Control to express support for the inclusion of diagnostic codes for heterozygous familial hypercholesterolemia, homozygous familial hypercholesterolemia and family screening for FH. Dr. Josh Knowles, Chief Medical Officer, Dave Pickhardt, … Read More

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On February 28th, the Caregiver Action Network (CAN) announced the launch of, a comprehensive online guide that addresses the distinct needs of family caregivers of loved ones with rare diseases.“As a caregiver of a loved one with a rare disease, you can feel overwhelmed and hardly know where … Read More