Our Corporate Sponsors are supporting the FH Foundation in its efforts to raise awareness and save lives of those with FH. Their contributions help fund programs, which encourage and advocate for increased knowledge of FH, earlier diagnosis, optimum treatment, and enhanced scientific understanding of this disease.
Corporate Foundation level Partners
CASCADE FH stands for CAscade SCreening for Awareness and DEtection of Familial Hypercholesterolemia. This nationwide patient registry is a uniquely designed database, which collects information on patients with FH via two pathways. The clinician portal allows healthcare providers to enter clinical information on individuals affected by FH, while the patient portal allows patients to enter information about their experience with this disease. This hybrid model allows for the gaining of insight into disease patterns, therapy trends, and quality of life. The collected data (secure, HIPAA-compliant and de-identified) enables scientific research of FH, which translates into better care and improved health outcomes.
The FH Foundation’s FH Advocates for Awareness Program brings together a team of familial hypercholesterolemia patients who receive formal training as public speakers and FH Foundation representatives. Advocates go out into the community to raise awareness of FH by sharing their personal experience with the disorder, and pairing up with lipid specialists as part of Grand Rounds to present a comprehensive view of FH to medical professionals.
The Patient and Provider Outreach Program provides non-lipid specialist physicians with educational materials to increase their understanding of the prevalence and severity of familial hypercholesterolemia. It also offers patients the opportunity to enroll in a free, 12-month program that provides comprehensive information about disease management and supports FH patients and their families.
The Global FH Summit brings together FH stakeholders from the international arena, including governmental agencies, professional and patient advocacy organizations, medical professionals and researchers, patients, payers and the industry. During the two-day event, they share insights and best practices to create action plans for improved awareness, diagnosis and treatment of FH, and bring the disorder to the forefront of a public health movement.
The FH Foundation’s Global Network customizes and translates educational materials for distribution around the globe, and especially in countries where FH is still underdiagnosed and undertreated. The FH Foundation plans to expand the program to include translation of the FH Foundation website, expansion of the FH Specialist Referral Network to include worldwide lipid specialists, and establishment of international FH Foundation chapters and support groups.
The Physician and FH Family Forums build the FH community through an expertly guided grassroots effort by bringing together key lipidologists in the U.S. and their patient population. Participants, who are encouraged to bring their family members, learn about FH and resources available to patients. They also get a rare chance to talk to a lipid specialist in depth about the management of this inherited disease, and to ask questions in a welcoming and encouraging environment.
Academic and Governmental Partners
- American Society of Preventive Cardiology
- Baylor University
- Centers for Disease Control (CDC)
- Duke Clinical Research Institute (DCRI)
- Foundation for Preventive and Integrative Medicine
- Harvard University
- National Heart, Lung, and Blood Institute (NHLBI)
- Nemours Foundation
- New York University
- Public Health Department, Michigan
- Rogosin Institute
- Stanford University
- University of California, Los Angeles
- University of Kansas
- University of Pennsylvania
- Yale University