FH Awareness Day 

FH Awareness Day is a national campaign initiated by the FH Foundation to raise awareness of FH in the general public. This annual event is held on the September 24th, during National Cholesterol Education Month. Previous FH Awareness Day campaigns consisted of community outreach through local Patient Advocate events and media kit distribution to FH Foundation Affiliates. Social media campaigns, such as “Tweet-a-thons” with FH experts and FH patient are used to broaden the reach to an international audience. 

FH Awareness Day 2015
For the first time ever, the FH Foundation will launch an outdoor campaign throughout the nation. Not only that, we will raise awareness of familial hypercholesterolemia worldwide! We have created a “media kit” to be shared with other FH advocacy organizations across the globe. This kit includes digital brochures, infographics, logos and banners, which organizations and individuals can use to raise the visibility of FH as a distinct disorder that needs aggressive and early treatment. (2015 media kit coming soon!  To download our 2014 FH Awareness Day Media Kit, please click here).

September 24th – Join our Tweet-a-Thon!  Encourage your family and friends to join us too.

View our 2014 Tweet-a-Thon

Get Involved:

If you have friends or family who have high cholesterol or you know someone who had a heart attack at an early age, please tell them about FH and ask them to join the FH Foundation.

1 Minute To Save 1 Family

The theme of this year’s FH Awareness Day is “One Minute, One Family”, because it only takes a minute to save a family from early heart disease.

Help us find the 1 person in 200 who has inherited high cholesterol, or familial hypercholesterolemia (FH), and you can save a family from early heart attacks caused by this common but underdiagnosed genetic disorder.

We have the tools to diagnose and treat FH. We only lack the awareness. If we can reach the more than 620,000 Americans who have FH, we can help prevent 24,000 heart attacks per year.

Why It’s Important

Early diagnosis > Early Treatment > Saves Lives
Millions of people around the world do not know that they and their families are at severe risk for early heart disease, heart attacks, and even death. Each person diagnosed with FH can reduce their risk for heart disease by 80% with early appropriate treatment and therapy.  

Let’s raise awareness to find and inform the 90% undiagnosed and prevent early heart disease:

  • FH is inherited high cholesterol. It is not caused by the food you eat. This also means that, in many cases, it is treated differently (usually more aggressively than lifestyle-induced high cholesterol)
  • Between 620,000 to 1.2 million people in the U.S. have FH. At least 90% of them have not been diagnosed
  • FH causes a 20x increased risk for early heart disease and heart attacks (before age 65 in women and before age 55 in men)
  • If left untreated, FH leads to atherosclerosis, coronary heart disease, and even death
  • Again, FH is inherited: if you have it, each of your first-degree relatives (parents, siblings, children) has a 50% chance of having it
  • 20% of heart attacks in people under 45 are caused by FH
  • In many cases, people with FH get misdiagnosed and do not receive the care they need. If you suspect you have FH, please consult your healthcare provider or find a lipid specialist

Help us make familial hypercholesterolemia visible. Help us raise awareness. Help us save lives.