Welcome to The FH Foundation
Thank you for your interest in The FH Foundation! As a patient-centered organization, our focus is on getting individuals with FH diagnosed and treated as early as possible, for a healthier and longer life. However, we can’t do this without your help! We work with an international group of health providers who support our mission by providing their expertise, sharing our resources with patients, encouraging them to sign up for the national CASCADE FH Registry, and participating in Grand Rounds lectures with our FH Advocates. Below you will find more information on our initiatives and what you can do to help us save lives.
One of the most common questions we receive is “Where do I find an FH specialist?” This is why the FH Foundation is rapidly growing its database of lipid specialists and providing patients with the right care. If you actively treat individuals with Heterozygous and Homozygous Familial Hypercholesterolemia, please fill in this form and join our FH Specialist Referral Network!
If you need quick FH guides for your patients, you can request free FH Foundation educational materials. Please see some samples below and fill in this form to place your order!
You can also download our comprehensive PowerPoint presentation on FH here.
In September 2013, the FH Foundation launched a nationwide CASCADE FH Registry. This is currently the only active FH registry in the United States. The registry goals are to:
- Facilitate interest in FH research
- Allow for greater participation of patients in clinical studies
- Gather natural history of patients in a cost-effective manner
- Improve patient health outcomes
The CASCADE FH Registry was developed as a hybrid model in that both patients and clinicians will be able to enter data. The FH Foundation’s CASCADE FH Registry represents a novel research paradigm with both clinic-based and population-based patient enrollment to ensure collection of high-quality, representative data on FH. The unique components of CASCADE FH may serve as a model for other patient-centered registries and address the growing need for more comprehensive FH screening, identification, and treatment.
To enroll as a clinical site, please click here. (Coming soon!)
Please encourage your FH patients to sign up here.
The FH Foundation pairs FH health providers and trained FH Advocates to present grand rounds lectures on FH. It is our experience that offering both the physician and patient perspective is most effective in educating the community on FH. If you’re interested in giving a local grand rounds presentation organized by the FH Foundation, please contact us at info@theFHfoundation.org. If available, we will match you up with a local FH Advocate. For more details, please call us at 626-465-1234.