The FH Foundation is a patient-centered non-profit dedicated to research, advocacy, and education of all forms of familial hypercholesterolemia



The ICD-10 Codes For Familial Hypercholesterolemia Are Approved!

Diagnosis codes will help identify population at high risk for early heart attacks, encourage optimal management and family screening while there is still time for prevention.

The FH Foundation announced today that two distinct ICD-10 Codes for Familial Hypercholesterolemia (FH) were approved by the ICD-10 Coordination … Read More

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Value Frameworks in Health Care: The Real Story from Real Patients

FH Foundation Participates in Partnership to Improve Patient Care (PIPC) Briefing on Capitol Hill
June 20, 2016

FH Foundation Director of Outreach, Cat Davis Ahmed, spoke alongside representatives from the Global Liver Institute, National Alliance on Mental Illness, International Myeloma Foundation, and CancerCare … Read More


Children and Cholesterol

Michelle and Jason Watts take their 7 year old daughter, Avery, to Nemours Children’s hospital every two weeks. Why? Because Avery’s LDL cholesterol was over 800.

Avery is living with the most severe form of familial hypercholesterolemia, HoFH. Familial Hypercholesterolemia causes premature heart disease. … Read More


The FH Foundation at Capitol Hill Today!

Today we had over 20 meetings with senators and representatives from around the country to raise awareness of familial hypercholesterolemia (FH).
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2016 FH Advocate for Awareness Training – Arlington, VA

The FH Foundation Advocates for Awareness Training will be held June 10-12 in Arlington, VA. The Advocates for Awareness program is part of an FH educational campaign that focuses on community outreach and strives to raise awareness of this vastly under-diagnosed and untreated disease. Advocates are individuals with … Read More