The FH Foundation is a patient-centered non-profit dedicated to research, advocacy, and education of all forms of familial hypercholesterolemia



National Wear Red Day

Today is National Wear Red Day – a day where we unite to raise awareness of heart disease and stroke.  Read why Tom, a father living with familial hypercholesterolemia goes RED:

Why do I wear Red today?
This is me on my LDL apheresis machine at the Reading Hospital. I have been doing this every two weeks … Read More


FH Foundation participates in NHC Value Rubric Roundtable

Cat Davis Ahmed, FH Foundation Director of Outreach, participated in the National Health Council’s Value Rubric Roundtable on February 1 in Washington, DC.
The FH Foundation is working to have your voice heard in policy discussions that affect you.  The question of value and access to treatments are important … Read More


Making FH Visible in 2015

Did you know 80% of cardiologists are unaware of the prevalence of FH?Every 33 seconds an individual in the United States has a heart attack.FH leads to early heart attacks. 50% of people die fromtheir first heart attack.MAKING FH VISIBLE378 doctors across 14 countries who specialize in FH are now in our physician referral … Read More


Diagnosing Familial Hypercholesterolemia – The Need for ICD-10 Codes for FH

The FH Specific Diagnosis Codes are on Track for October 2016The transition to ICD-10 has begun and you might be wondering why there are still no International Classification of Diseases (ICD) codes specifically for familial hypercholesterolemia (FH).  The answer is that we are still waiting for the ICD-10 Coordination … Read More


Have you heard? There is a conversation going on about your health care.

The FH Foundation is working to ensure your voice, backed up by clinical and real world data, is heard loud and clear in conversations that impact your health.  We are working with patients, doctors, nurse practitioners, policy makers, drug manufacturers and payers to make sure Familial Hypercholesterolemia (FH) is … Read More