The FH Foundation is a patient-centered non-profit dedicated to research, advocacy, and education of all forms of familial hypercholesterolemia



Diagnosing Familial Hypercholesterolemia – The Need for ICD-10 Codes for FH

The FH Specific Diagnosis Codes are on Track for October 2016The transition to ICD-10 has begun and you might be wondering why there are still no International Classification of Diseases (ICD) codes specifically for familial hypercholesterolemia (FH).  The answer is that we are still waiting for the ICD-10 Coordination … Read More


Have you heard? There is a conversation going on about your health care.

The FH Foundation is working to ensure your voice, backed up by clinical and real world data, is heard loud and clear in conversations that impact your health.  We are working with patients, doctors, nurse practitioners, policy makers, drug manufacturers and payers to make sure Familial Hypercholesterolemia (FH) is … Read More


World Heart Day – September 29, 2015

I was diagnosed with familial hypercholesterolemia (FH) at 29. Like many FH patients, I had never heard of the disorder before my diagnosis. But as I learned more about FH, it was obvious that this disorder has been a part my family’s life for generations.My dad had his first heart attack at age 36. His had his last … Read More


FH Advocate Shares Her Story with Cardiologists at ACC CME in Orlando FL

Photo (left to right): Dr. Anne Goldberg, Dr. Seth Baum, Mackenzie AmesAn engaged gathering of medical professionals met for the Florida Chapter of The American College of Cardiology’s continuing medical education series on FH last week.  This is the second in a series of eight CME lectures the ACC is offering … Read More


Approval of New Therapies brings increased Awareness of Familial Hypercholesterolemia

Amgen’s PCSK9 inhibitor, Repatha (evolocumab), has been approved today by the U.S. Food and Drug Administration (FDA).We all have the chance to prevent early heart disease for over a million Americans, just by saying the words “familial hypercholesterolemia.”  Until recently, virtually no one was saying those … Read More