The FH Foundation is a patient-centered non-profit dedicated to research, advocacy, and education of all forms of familial hypercholesterolemia


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FH Advocate Talks about Lifetime Management HoFH at CMHC

FH Advocate for Awareness, Allison Jamison, joined FH Foundation Scientific Advisory Board Member Dr. James Underberg (Clinical Assistant Professor of Medicine NYU Medical School & NYU Center for CV Prevention, Director Bellevue Hospital Lipid Clinic, President-Elect NLA) to speak about her experience living with … Read More


We Want to Hear From You

Before the introduction of statins in the late 1980s there was little that could be done to stop the rapid progression of coronary heart disease in those of us who have familial hypercholesterolemia. Now, decades of studies have proven that early treatment to lower cholesterol can save lives.

The introduction … Read More


Join us for FH Awareness Day

FH Awareness Day (est. 2012) is a campaign initiated by the FH Foundation to raise awareness of FH in the general public. This annual event is held on the September 24th, during National Cholesterol Education Month. Previous FH Awareness Day campaigns consisted of community outreach through local Patient Advocate events … Read More


Experts, patients come together to address barriers to PCSK9 inhibitor access

BOCA RATON, Fla. — The FDA approved the first two PCSK9 inhibitors for use in patients with familial hypercholesterolemia and atherosclerotic CVD who require additional LDL lowering over a year ago, but cost and coverage remain barriers to access for patients and health care providers. A town hall forum held during … Read More


Transforming Technology: The Future of the CIO in the Life Sciences

Information is the coin of the realm in biopharmaceuticals—but what will it take to make the vast reams of data now being generated in the transactional tsunami of modern healthcare truly useful to its users? To help answer this question, Pharm Exec recently hosted an editorial Roundtable.

Key Points from Kelly … Read More