The FH Foundation is a patient-centered non-profit dedicated to research, advocacy, and education of all forms of familial hypercholesterolemia



Approval of New Therapies brings increased Awareness of Familial Hypercholesterolemia

Amgen’s PCSK9 inhibitor, Repatha (evolocumab), has been approved today by the U.S. Food and Drug Administration (FDA).We all have the chance to prevent early heart disease for over a million Americans, just by saying the words “familial hypercholesterolemia.”  Until recently, virtually no one was saying those … Read More


FH Advocate for Awareness Shares Her Story at the ASPC

FH Foundation Advocate for Awareness, Rhiannon, recently represented the FH Foundation at the 30th annual American Society for Preventive Cardiology conference in Boca Raton, FL. She joined Dr. Seth Baum as part of his presentation on FH to share her story. Read some of her story here:“Before my diagnosis, I had … Read More

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I Am So Very, Very Lucky!

written by: Stacey, FH Foundation board member and living with FHI am so very, very lucky!Imagine 49 years ago being 6 years old and learning that your father has died.Imagine finding out that you and your only sibling have the same disease that killed him and that there is no treatment.And imagine living with the knowledge … Read More

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New Drug Sharply Lowers Cholesterol, but It’s Costly – NY Times

“[PCSK9 inhibitors] represent a new era of hope for us,” said Katherine Wilemon, founder and president of the FH Foundation, an advocacy group. “We tend to take everything out there that is available, and even with that we can’t get our LDL levels down to a ‘safe’ level.”Ms. Wilemon, whose organization … Read More


New Therapy Approved by the FDA, New Hope for FH Patients

Today families living with familial hypercholesterolemia (FH) have new hope that they can win the fight against aggressive premature heart disease.  Individuals with FH need all the help they can get to manage this risk factor encoded in their genes. Fortunately, more help is on the way for those who need it.The Food … Read More