The FH Foundation is a patient-centered non-profit dedicated to research, advocacy, and education of all forms of familial hypercholesterolemia



Living with Familial Hypercholesterolemia

What’s Your Normal?

I have Familial Hypercholesterolemia. I inherited the gene from my father, who inherited it from his mother, who carried our French Canadian FH gene. FH is a genetic disorder that causes very high LDL cholesterol from birth, unrelated to diet and exercise. For me, knowing I have ridiculously … Read More


Impacting the Future of FH Care: Joining a Clinical Trial for Familial Hypercholesterolemia

I really didn’t know how to go about finding out about clinical trials, nor had I really given the idea much thought. But after seeing a news story about a new drug coming out for FH, I decided to ask my cardiologist if he knew anything about that new drug. He did some research on my behalf, and came back with information … Read More


Missed Opportunities in FH Treatment

Pretreatment LDL 375… Check
Tendon xanthomas… Check
Corneal arcus… Check
Parent with a heart attack at 36… Check
Genetic testing with a positive finding of a pathogenic FH mutation… Check

No matter how you slice it, under any set of criteria, I have FH – a genetic mutation … Read More


FH Foundation on Capitol Hill – Visit to Senator Ron Wyden

The FH Foundation joined the Partnership to Improve Patient Care (PIPC) and other organizations advocating for patients with disabilities and chronic illness on January 11, to ask Senator Ron Wyden (D-OR), Ranking Member of the Senate Finance Committee with jurisdiction over Medicare and Medicaid, to help ensure that … Read More


Familial Hypercholesterolemia A Struggle that Stretches Beyond the Obvious

Familial Hypercholesterolemia, or FH, is a genetic cholesterol disorder often leading to premature heart attacks, stents, or even death. Afflicted young families face circumstances ordinarily reserved for the elderly. Imagine a five-year-old child witnessing her mother being rushed to a hospital in the throes of a heart … Read More