The FH Foundation is a patient-centered non-profit dedicated to research, advocacy, and education of all forms of familial hypercholesterolemia



World Heart Day – September 29, 2015

I was diagnosed with familial hypercholesterolemia (FH) at 29. Like many FH patients, I had never heard of the disorder before my diagnosis. But as I learned more about FH, it was obvious that this disorder has been a part my family’s life for generations.My dad had his first heart attack at age 36. His had his last … Read More


FH Advocate Shares Her Story with Cardiologists at ACC CME in Orlando FL

Photo (left to right): Dr. Anne Goldberg, Dr. Seth Baum, Mackenzie AmesAn engaged gathering of medical professionals met for the Florida Chapter of The American College of Cardiology’s continuing medical education series on FH last week.  This is the second in a series of eight CME lectures the ACC is offering … Read More


Approval of New Therapies brings increased Awareness of Familial Hypercholesterolemia

Amgen’s PCSK9 inhibitor, Repatha (evolocumab), has been approved today by the U.S. Food and Drug Administration (FDA).We all have the chance to prevent early heart disease for over a million Americans, just by saying the words “familial hypercholesterolemia.”  Until recently, virtually no one was saying those … Read More


FH Advocate for Awareness Shares Her Story at the ASPC

FH Foundation Advocate for Awareness, Rhiannon, recently represented the FH Foundation at the 30th annual American Society for Preventive Cardiology conference in Boca Raton, FL. She joined Dr. Seth Baum as part of his presentation on FH to share her story. Read some of her story here:“Before my diagnosis, I had … Read More

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I Am So Very, Very Lucky!

written by: Stacey, FH Foundation board member and living with FHI am so very, very lucky!Imagine 49 years ago being 6 years old and learning that your father has died.Imagine finding out that you and your only sibling have the same disease that killed him and that there is no treatment.And imagine living with the knowledge … Read More