The FH Foundation is a patient-centered non-profit dedicated to research, advocacy, and education of all forms of familial hypercholesterolemia



Familial hypercholesterolemia: A genetic disease in need of early testing

Written by Jennifer Huber on April 26, 2016 in Stanford Medicine’s Scope Blog

New research shows that familial hypercholesterolemia — a genetic condition that leads to high LDL cholesterol — is commonly diagnosed late and patients often don’t get adequate treatment. FH can cause aggressive and premature … Read More


Response to Matt Perrone‘s April 20th Associated Press Piece on PCSK9 Inhibitors

Posted on April 25, 2016 in
By Seth J. Baum MD

I was fortunate to have the opportunity to speak at length with Matt Perrone prior to his submitting an April 20th article on the PSCK9 inhibitors’ unexpectedly low uptake in the medical community. His piece was excellent; yet it failed … Read More


Running 4 Rare!

Kyriakos Economides

Kyriakos Economides is doing something extraordinary on Monday, April 18. He is running the Boston Marathon in honor of Christian and Max, and others who are living with Homozygous Familial Hypercholesterolemia (HoFH) as well as all those living with rare diseases. HoFH is the rare and most severe … Read More

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FH Grand Rounds: Montefiore University Hospital and Einstein College of Medicine in New York City

Familial Hypercholesterolemia was the topic of Department of Medicine Grand Rounds on March 3 at both Montefiore and Einstein in New York City. Dr. James Underberg, Clinical Assistant Professor of Medicine at NYU School of Medicine and NYU Center for Prevention of Cardiovascular Disease, Director of Bellevue Hospital … Read More


The FH Foundation Goes to DC!

FH Foundation volunteer Advocates for Awareness, Tom Weiser, and Michelle and Jason Watts, were with Cat Davis Ahmed, Director of Outreach at the National Institutes of Health and on Capitol Hill in Washington, DC for Rare Disease Week representing those in the FH Community with Homozygous FH (HoFH). The group spoke … Read More