The FH Foundation is a patient-centered non-profit dedicated to research, advocacy, and education of all forms of familial hypercholesterolemia



Vote for the FH Foundation in the SXSW PanelPicker

Please take few minutes to go to the SXSW PanelPicker website and cast your “Thumbs Up” vote for our proposed presentation.

The FH Foundation has proposed a presentation by CEO & Founder, Katherine Wilemon, to the SXSW Interactive conference. SXSW Interactive is a premier technology conference with over 35,000 … Read More

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What’s on the Horizon for HoFH Treatment

This is a promising time for all who live with familial hypercholesterolemia, but it is perhaps especially important for those in our community who live with the most severe form of this life-threatening genetic condition – Homozygous FH (HoFH).

The past 5 years have ushered in a new era of incredible hope … Read More


FH Advocate Raising Awareness in Athens, Georgia

Advocate for Awareness Rhiannon Eades represented the FH Foundation at a Community Wellness Fair on Saturday, July 23, at Athens-Clarke County Library in Athens, Georgia. The wellness fair brought nearly 20 local organizations together to share information about health, safety and wellness resources and to offer free … Read More


The ICD-10 Codes For Familial Hypercholesterolemia Are Approved!

Diagnosis codes will help identify population at high risk for early heart attacks, encourage optimal management and family screening while there is still time for prevention.

The FH Foundation announced today that two distinct ICD-10 Codes for Familial Hypercholesterolemia (FH) were approved by the ICD-10 Coordination … Read More

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Value Frameworks in Health Care: The Real Story from Real Patients

FH Foundation Participates in Partnership to Improve Patient Care (PIPC) Briefing on Capitol Hill
June 20, 2016

FH Foundation Director of Outreach, Cat Davis Ahmed, spoke alongside representatives from the Global Liver Institute, National Alliance on Mental Illness, International Myeloma Foundation, and CancerCare … Read More