The FH Foundation is a patient-centered non-profit dedicated to research, advocacy, and education of all forms of familial hypercholesterolemia



FH Foundation on Capitol Hill – Visit to Senator Ron Wyden

The FH Foundation joined the Partnership to Improve Patient Care (PIPC) and other organizations advocating for patients with disabilities and chronic illness on January 11, to ask Senator Ron Wyden (D-OR), Ranking Member of the Senate Finance Committee with jurisdiction over Medicare and Medicaid, to help ensure that … Read More


Familial Hypercholesterolemia A Struggle that Stretches Beyond the Obvious

Familial Hypercholesterolemia, or FH, is a genetic cholesterol disorder often leading to premature heart attacks, stents, or even death. Afflicted young families face circumstances ordinarily reserved for the elderly. Imagine a five-year-old child witnessing her mother being rushed to a hospital in the throes of a heart … Read More


Boston Family Forum

The FH Foundation hosted an FH Family Forum in Boston on December 10. This event brought together an amazing group of individuals who have Familial Hypercholesterolemia (FH), their family members, and FH experts Dr. Sarah de Ferranti of Boston Children’s Hospital and Dr. Linda Hemphill of Massachusetts General Hospital, … Read More


Remembering Pearl Harbor on the 75th Anniversary

“I was honored to be asked to ring the ships bell on behalf of fallen servicemen” said FH Foundation Chairman of the Board, Dr. William Neal, of the 75th anniversary of the attack on Pearl Harbor. “USS West Virginia was one of the first battleships hit, and over 100 sailors died. In commemoration of … Read More


Homozygous FH Community Gathering

An amazing group of individuals and family members affected by Homozygous FH gathered together for dinner and conversation on December 2 in the Washington, DC area. The FH Foundation hosted the event, bringing together individuals from across the US with HoFH, and parents whose children have HoFH. Dr. Bart Duell of … Read More