The FH Foundation is a patient-centered non-profit dedicated to research, advocacy, and education of all forms of familial hypercholesterolemia



The FH Foundation And BMC Racing Team Partner To Bring Awareness To Familial Hypercholesterolemia (FH)

The FH Foundation today announced a partnership with BMC Racing Team to raise awareness of a genetic disorder known as familial hypercholesterolemia (FH).

FH is the most common cause of early heart attacks and premature coronary heart disease, impacting people of every race and ethnicity. More than 30 million people … Read More


Network for Excellence in Health Innovation (NEHI) Annual Meeting Panel on Affording Tomorrow’s Cures

FH Foundation Director of Policy and Outreach, Cat Davis Ahmed, spoke on a panel at the Network for Excellence in Health Innovation (NEHI) Annual Meeting April 26 to discuss the potential for paying for innovative, high-impact therapies through novel arrangements in the healthcare system to share risks and rewards. … Read More

Patients in need of cholesterol lowering therapy are not being granted access to it, according to a novel data analysis by the Familial Hypercholesterolemia Foundation. (PRNewsfoto/The FH Foundation)

FH Foundation’s FOCUS analysis shows that regardless of medical need, prescriptions for PCSK9 inhibitors are being rejected at high rates

Pasadena, Calif. – The Familial Hypercholesterolemia Foundation today published a study in Circulation revealing high rejection rates for PCSK9 inhibitors in the two at-risk patient populations approved for this novel cholesterol-lowering class of therapy.

The FH Foundation’s FOCUS (FH Optimal Care in the United … Read More


The Mysteries of our Genomes, Translated into Action

When I was approximately seven years old, my family was referred to Boston Children’s Hospital for evaluation of our cholesterol levels. My father, who was in his mid-forties, had just had a heart attack. This was in the early 1970s, when Brown and Goldstein were embarking upon their remarkable and fruitful collaboration, … Read More


I Never Had a Clue

I had no idea I carried a potentially fatal genetic mutation, because we never talked about our family history.

My mother was a foster child from a young age. She never spoke about her parents, probably because she didn’t know much about them. My mother was married young. My older half brother and sister were … Read More