FH Foundation Director of Policy and Outreach, Cat Davis Ahmed, spoke on a panel at the Network for Excellence in Health Innovation (NEHI) Annual Meeting April 26 to discuss the potential for paying for innovative, high-impact therapies through novel arrangements in the healthcare system to share risks … Read More
Monthly Archives: April 2017
Pasadena, Calif. – The Familial Hypercholesterolemia Foundation today published a study in Circulation revealing high rejection rates for PCSK9 inhibitors in the two at-risk patient populations approved for this novel cholesterol-lowering class of therapy.
The FH Foundation’s FOCUS (FH Optimal … Read More
When I was approximately seven years old, my family was referred to Boston Children’s Hospital for evaluation of our cholesterol levels. My father, who was in his mid-forties, had just had a heart attack. This was in the early 1970s, when Brown and Goldstein were embarking upon their remarkable and … Read More
I had no idea I carried a potentially fatal genetic mutation, because we never talked about our family history.
My mother was a foster child from a young age. She never spoke about her parents, probably because she didn’t know much about them. My mother was married young. My older half brother … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
Why the insurance company finally approved my Praluent prescription and who is paying for it.
I feel like I should have written these entries as part of a series: I should have named them all the same thing and … Read More
“Having the opportunity to participate in a hands-on strategy session with the American Heart Association around targeting lowering cholesterol was extremely important. As an FH Advocate, it’s important to have a voice in educating the public, increasing awareness, and sharing the patient perspective.” … Read More
Avery Watts was diagnosed with the rare disease Homozygous Familial Hypercholesterolemia at the age of 6. After her diagnosis, Avery’s life became much more complicated. Luckily, she’s a very strong little girl. Through this project, she hopes to encourage others, especially those with … Read More