When the FH Foundation asked me to write Avery’s story for Rare Disease Day, I felt an immense amount of pressure to get it just “right.” It’s such an important story and I know with this fast-paced world, getting people to stop scrolling and read past the title would be difficult. What does … Read More
Monthly Archives: February 2020
Tom knew, for as long as he could remember, that almost everyone in his family had very high cholesterol. Both of Tom’s uncles had multiple heart surgeries and strokes before the age of 50. That was normal for his family.
When Tom had a heart attack at the age of 29, he and his wife Rachelle were … Read More
We are pleased to announce that Dr. Mary McGowan has joined the FH Foundation Team as Chief Medical Officer, effective January 2, 2020. This is Dr. McGowan’s second role with the organization. She was a founding FH Foundation board member and our first Chief Medical Officer in 2011 back when every … Read More
We are pleased to announce that Stacey Lane, JD, is the newly elected Chairwoman of the Board of the FH Foundation. Ms. Lane has contributed greatly to the growth of the FH Foundation, serving as a board member for the past six years and Vice Chair for the last four years. A graduate of the University … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
In some ways, 4 years seems like yesterday. And in most of others, the past 4 years since my open-heart surgery feel like a lifetime. I am not the same person I left on the other edge of that precipice. I never will be. … Read More