Board of Directors
William A. Neal, MDChairman of the Board
William A. Neal, MD, a native of Huntington, WV, earned his undergraduate degree from Xavier University in Cincinnati, Ohio in 1962. His medical degree was awarded by West Virginia University in 1966, where he was the first recipient of the Edward J. Van Liere Award for medical student research. From 1985 to 1998 he served as Chair of the WVU Department of Pediatrics. Dr. Neal was instrumental in the conceptualization and development of WVU Children’s Hospital and served as its first Medical Director. Dr. Neal is currently James H. Walker Professor of Preventive Cardiology in the Department of Pediatrics at West Virginia University.
Upon graduation from medical school, Dr. Neal continued training as a rotating intern at the Milwaukee County General Hospital, Marquette University, 1966-’67. He was then commissioned in the U.S. Navy, where after graduation from the Naval Aerospace Medical Institute, he was assigned as Flight Surgeon aboard the USS Constellation. He made two combat tours to Vietnam.
Postgraduate education in his chosen specialty of pediatric cardiology was accomplished at the University of Minnesota 1970-74. Dr. Neal then joined the faculty at WVU. He was awarded Emeritus status July 1, 2014 after forty years of service to the University and State.
Neal’s clinical career at WVU focused on development and regionalization of newborn intensive care, establishment of a statewide system of outreach clinics in pediatric cardiology, and founding of the Coronary Artery Risk Detection In Appalachian Communities (CARDIAC) Project. CARDIAC has provided risk factor surveillance, intervention, and research for over 150,000 school-age children from every West Virginia Community over the past sixteen years. As the largest comprehensive accumulation of health status data on children in the nation it has strongly influenced policy guidelines of the American Academy of Pediatrics regarding blood cholesterol screening and treatment for children at risk for premature heart disease and diabetes. He currently serves on the Board of Directors of the Familial Hypercholesterolemia Foundation.
He was named Distinguished Alumnus of the WVU School of Medicine in 2006.
Stacey Lane, JD, MBEVice Chair
Stacey Lane is a graduate of the University of Pennsylvania and received her J.D. from Fordham University School of Law. Additionally, she received a Master’s Degree in Bioethics from Penn, with a concentration in public policy and regulation of new medical technologies. In addition to her work with the FH Foundation, Stacey is a member of the Board of Trustees of Montefiore Hospital in the Bronx, and is working on several bioethics initiatives in the New York area. She is also on the Advisory Council of the Hastings Center and is a member of the Advisory Board of the Bioethics Masters Program at Columbia University. Having been diagnosed with FH when she was 8, Stacey was originally treated at Rockefeller University in New York in the 1960s in some of the first cholesterol studies and has been monitored consistently since that time. She is the mother of three sons, two of whom also have FH.
Seth J. Baum, MDSecretary Treasurer
Dr. Seth J. Baum, a graduate of Columbia College of Physicians and Surgeons, completed training in Internal Medicine, Cardiology, Interventional Cardiology, and Electrophysiology. He has directed the Cardiac Catheterization laboratories at both Boca Raton and North Ridge hospitals, where he also founded the Electrophysiology laboratories. Dr. Baum has worked extensively in Integrative Cardiology, directing the Harvard affiliated Mind/Body Medicine Institute, Boca Raton division, lecturing nationally to physicians and the lay public, and teaching a graduate level course in Integrative Medicine at Florida Atlantic University. In 2002, he founded VitalRemedyMD, a conservative, scientifically-based nutritional supplement company, and later formulated VitalOils1000, the first omega-3 soft gel to contain 1,000 mg of combined EPA+DHA. In 2002, Dr. Baum also established The Foundation for Preventive and Integrative Medicine, a non-profit entity devoted to charity, education and research in preventive medicine.
Dr. Baum is a Founding Physician/Scientist Member of the Society for Cardiovascular CT and is board certified in Cardiovascular CT. He lectures extensively in the fields of Lipidology, Preventive cardiology, and Integrative Cardiology. In July of 2011, Dr. Baum was appointed Director of Women’s Preventive Cardiology at The Christine E. Lynn Women’s Health and Wellness Center, Boca Raton Regional Hospital. His responsibilities include both developing and overseeing this program. He is the Treasurer of the American Society for Preventive Cardiology (ASPC).
He has written numerous articles as well as two books, The Total Guide to a Healthy Heart, and Age Strong, Live Long; Lessons from my Patients. In 2013 he was awarded the Cleveland Heart Lab’s annual “Heart Award” for his lifelong dedication to Preventive Medicine. Dr. Baum has been a frequent guest on radio and TV shows including National Public Radio, Voice of America, CBN, Fox, and MSNBC. On faculty at FAU medical school and the University of Miami, Miller School of Medicine, Dr. Baum has a practice in Boca Raton, Florida that is devoted predominantly to Clinical Lipidology – he is board certified by the American Board of Clinical Lipidology – and Cardiovascular Prevention.
Dr. Baum also runs the only LDL-Apheresis program in southeast Florida.
Barry A. Brooks, JDBoard Member
Barry Brooks is a partner of Paul Hastings, LLP, an international law firm with approximately 1,000 attorneys, and has practiced with that firm for 35 years, starting in the Los Angeles and Santa Monica, California offices, and moving to New York City in 1990. Mr. Brooks is currently the Chair the New York Office of the Firm – which at 275 attorneys is the Firm’s largest. Mr. Brooks represents parties in a variety of complex transactions and is the chair of the firm’s New York office and a partner in its Corporate Department. He represents parties in a broad range of public and private domestic and international mergers and acquisitions, private equity, corporate finance and joint venture transactions. Mr. Brooks represents private equity funds, hedge funds and other private investment funds and institutional investors and private and public operating companies in various industries. Mr. Brooks also advises public companies and their boards and committees in connection with corporate responsibility, fiduciary duty, disclosure and executive employment matters.
Mr. Brooks is the Vice Chair and a board member of the Tennis Foundation Of Connecticut, which has sponsored the annual Connecticut Open tennis tournament since 1989 and sponsors multiple programs to promote women’s causes and local youth access to tennis and other sports programs.
Mr. Brooks is a member of the State Bars of New York and California and of the American Bar Association. Mr. Brooks received his A.B. degree, summa cum laude, Phi Beta Kappa, in 1978 from the University of California at Los Angeles and his J.D. degree, cum laude, in 1981 from Harvard Law School, cum laude.
Christian JacobsBoard Member
Christian is a founding member of the FH Foundation. He has been a key member of the Foundation, as a volunteer FH Advocate for Awareness and as a Board Member. Christian has been instrumental in the establishment of the Homozygous FH Community of the FH Foundation, an effort to mobilize this rare community for support and advocacy. He is an active FH Advocate for Awareness, speaking publicly about HoFH and one-on-one with families who are affected by this very serious, life-threatening condition. He is a student at Mount Carmel College of Nursing and the published author of a beautiful children’s book about having a rare disease: The Rare Jean Bear. Christian represents the hope that people with homozygous FH can live longer, healthier lives filled with meaning and purpose.
Joshua Knowles, MD, PhDChief Medical Advisor
Dr. Joshua W. Knowles is an Attending Physician in the Stanford Center for Inherited Cardiovascular Disease where he treats patients with Familial Hypercholesterolemia (FH). He has had a longstanding interest in the genetic (inherited) basis of cardiovascular disease and in particular the use modern genetic techniques to improve our ability to diagnose and treat patients at risk of heart disease. Josh completed his MD-PhD at the University of North Carolina at Chapel Hill where he worked in the lab of Prof. Nobuyo Maeda and Nobel Laureate Oliver Smithies studying animal models of atherosclerosis and lipid metabolism. He then completed his Internal Medicine residency and Cardiovascular Medicine fellowship training at Stanford University working in the lab of Dr. Thomas Quertermous. He has published over 35 papers focused on heart disease with research projects currently funded by the National Institutes of Health and the American Heart Association. He is particularly excited to be involved with the FH Foundation in their mission to increase awareness of this condition, identify patients with FH, encourage screening of family members of those with FH and facilitate treatment of FH patients. He views FH as a “winnable battle” because once FH is identified, it can be usually be treated quite effectively. Josh and his wife Juliet live in Palo Alto with their daughter.
Daniel J. Rader, MDChief Scientific Advisor
Dr. Rader is the Seymour Gray Professor of Molecular Medicine at the Perelman School of Medicine at the University of Pennsylvania. He serves as the Chair of the Department of Genetics as well as the Chief of the Division of Translational Medicine and Human Genetics in the Department of Medicine. He is also Associate Director of Penn’s Institute for Translational Medicine and Therapeutics. Dr. Rader’s research focuses on the human genetics and functional genomics of lipoprotein metabolism and atherosclerosis, as well as the translational implications for novel therapeutic approaches. He led the scientific and clinical development of a first-in-class inhibitor of microsomal transfer protein for the treatment of severe hypercholesterolemia, which is now on the market. He has a particular interest in HDL metabolism and function, and novel approaches to targeting HDL metabolism and reverse cholesterol transport in the treatment, prevention, and regression of atherosclerosis. Dr Rader trained in internal medicine at Yale-New Haven Hospital and in human genetics and physiology of lipoprotein metabolism at the National Institutes of Health. He has been on the Penn faculty since 1994. Dr. Rader is a member of the American Society of Clinical Investigation, the Association of American Physicians, and the Institute of Medicine of the National Academy of Sciences. He is a recipient of several awards including the Clinical Research Award from the American Heart Association.
Katherine WilemonFounder, CEO
Katherine’s own journey to receive an accurate diagnosis and appropriate care for Familial Hypercholesterolemia (FH) urged her to devote her life to this cause. After being turned away from the ER several times and having a heart attack at 38, Katherine set out to raise awareness of FH and save lives. Katherine has spoken to thousands of people across the US and Europe in her effort to bring FH into focus, both for the public and the medical community. In the USA alone there are more than 650,000 people in the USA affected by FH, yet only 10% of them are diagnosed. With the formation of The FH Foundation in 2011, Katherine’s goals are to reverse the shocking statistics and empower people with FH to have longer, healthier lives.