Meet the FH Foundation Advocates!
FH: A Common Disorder, An Uncommon Diagnosis
The FH Foundation’s Advocates for Awareness Program aims to recruit volunteers who can represent us by sharing their experiences with FH and helping others through their own journeys.
- Are you or any of your family members affected by Familial Hypercholesterolemia?
- Are you interested in finding out how you can raise awareness of this life-threatening but manageable condition in your local community?
- Would you like to take action and use the story of your FH journey to help others through theirs?
If the answer is “Yes,” we invite you to APPLY to become a volunteer!
As a volunteer for the FH Foundation, you can decide what role you would like to play: participate in educational outreach to raise awareness of FH among health professionals and the general public, connect with others to provide support, distribute FH materials locally or all of the above!
There are many other opportunities to get involved and spread the word:
- Become an Advocate for Awareness and present your FH story to the community
- Serve as a mentor to other individuals with FH and caregivers
- Deliver educational brochures and materials to local clinics and hospitals
- Email support to a newly diagnosed patient in your area
- Provide a charitable donation or arrange a local fundraiser
The FH Foundation Advocates for Awareness™ Program
The Advocates for Awareness program is part of an FH educational campaign that focuses on community outreach and strives to raise awareness of this vastly under-diagnosed and under-treated disorder. Advocates are individuals with FH who have been trained to share their stories and important messages about screening, early detection and treatment of familial hypercholesterolemia. On their own, or in partnership with a local medical expert, FH Advocates reach out to hospitals, clinics, worksites, places of worship, and other local organizations to distribute educational materials, give presentations, conduct special events, or encourage the media to cover FH stories.
Join Us and Share Your Story!
As a FH Foundation Patient Advocate, you will make a significant difference in the lives of other individuals with FH by advocating on their behalf and encouraging more people to join the Foundation to strengthen our voice.
Who may apply to become an ADVOCATE?
Individuals who have Familial Hypercholesterolemia (FH), or a relative/caregiver of someone who has it.
The FH Foundation is committed to a diverse membership, and encourages individuals of all ages, genders, racial and ethnic backgrounds, native languages, and income and education levels, to apply. If you commit to volunteering as an Advocate, you will be asked to agree to the criteria for participation, which can be viewed by clicking here.
After completing the application, you will be asked to participate in a telephone interview. Participants are selected as an Advocate based on the strength of their application, including relevant life experiences, volunteer history, and/or recommendations. Racial and ethnic diversity and geographic location are also considered.
Advocate Training Workshop
Each year we hold an Advocates for Awareness Training Workshop to train new Advocates. This is your opportunity to meet other volunteers and the FH Foundation Team, receive a comprehensive orientation to the Foundation, learn the medical aspects of FH and heart disease from lipid specialists and participate in one-on-one coaching on how to tell your personal story in a compelling manner. This in-depth training experience is intended to elevate your personal medical expertise and strengthen your public speaking skills to be able to communicate effectively with health professionals and lay-people alike.