Advocating on Capitol Hill

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FH Advocates for Awareness headed to Capitol Hill to make sure their elected representatives #KnowFH.


The FH Foundation® trained a new group of FH Advocates June 3rd-4th in Washington D.C. After two days of intense preparation, these dedicated volunteers visited 24 Congressional offices on Capitol Hill to raise awareness of familial hypercholesterolemia (FH) as a public health concern impacting thousands of families.

advocatesmap2The FH Foundation now has 60 trained FH Advocates in 26 states. We are deeply grateful for their commitment to take action in their communities and at a national level to improve the understanding, diagnosis and care of individuals with FH across the US.
“Being a part of the FH Foundation means shedding light on the shadow that has been cast over our families for more than 3 generations – shifting the power of my disease from victim to advocate.”
– Sarah, FH Advocate

The FH Advocates for Awareness program included:
  • Understanding Familial Hypercholesterolemia – an intensive course with medical experts, Dr. Daniel Soffer, Clinical Associate Professor of Medicine at the Perelman School of Medicine, University of Pennsylvania, and Dr. Sarah Clauss, Assistant Professor, Department of Cardiology at Children’s National Medical Center in Washington, DC.
  • The Power of FH Research, Advocacy, and Awareness – an overview of the FH Foundation’s innovative programs to improve the understanding, accelerate the diagnosis, and optimize the care of FH.
  • A day on Capitol Hill, visiting Congressional offices to raise awareness of the key issues impacting individuals and families living with FH.

“The FH Foundation is a resource for my condition that gives me additional support and knowledge to help educate others in my community.”
– Jen, FH Advocate
 
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If you’d like to join this incredible team of volunteers Raising Awareness, Saving Lives

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If you’d like to invite an FH Foundation Advocate to speak at one of your events

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“As an FH Advocate, I am part of a powerful team that changes mindsets in the medical community and among patients through advocacy and community awareness!”
– Joe, FH Advocate

The FH Foundation gratefully acknowledges the generous support received from our FH family partners and corporate sponsors for the Advocates for Awareness Program:

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