The FH Foundation’s CASCADE FH Registry is the only active national FH patient registry.The CASCADE FH™ Registry is a longitudinal observational study reaching the vastly under-diagnosed and under-served population of individuals with FH in conjunction with healthcare providers and academic institutions to Improve outcomes through research. It serves as a key Instrument in supporting health service planning and data analysis for epidemiological, clinical and outcomes research.
Cascade FH® Registry – Clinical
TOTAL ENROLLED 40 clinical sitesThe FH Foundation has designed the CASCADE FH Registry as an innovative hybrid Initiative to maximize reach and data collection. Data is collected from both clinicians and patients. The registry clinical sites are made up of lipid centers across the US.These lipid clinics enter baseline and follow-up data on demographic, laboratory value, treatment, and clinical events.