Cascade FH® Registry – Clinical
3960
TOTAL ENROLLED 40 clinical sites
The FH Foundation has designed the CASCADE FH Registry as an innovative hybrid Initiative to maximize reach and data collection. Data is collected from both clinicians and patients. The registry clinical sites are made up of lipid centers across the US.These lipid clinics enter baseline and follow-up data on demographic, laboratory value, treatment, and clinical events.MAIN OBJECTIVES
– Identify and enroll FH patients through clinic-based, community-based, and family-based screening initiatives to track therapy, patient-reported outcome, and clinical outcomes overtime. – Evaluate patterns of real world clinical practice and patient experiences to contribute to the state of scientific knowledge about FH diagnosis and management, quality of life and long-term health outcomes. – Maximize the adherence to guideline-recommended lipid lowering treatments for patients with FH. – Promote awareness of FH prevalence, riskfactors and optimal management through education at both the patient and provider levels. RECENT FINDINGS* As of February 2017
POSTER PRESENTATIONS


