A strategic imperative of the FH Foundation is to increase FH diagnosis and improve the rate of cascade screening. We began this work in 2013 with the establishment of the CASCADE FH Registry (CAscade SCreening for Awareness and DEtection of Familial Hypercholesterolemia Registry) and continue today. … Read More →
What is the impact of early diagnosis and appropriate treatment on disease management and longevity for individuals with familial hypercholesterolemia (FH) over the course of 45 years?
I answered this and many other questions in this research letter titled “Life by the Numbers: Living with Familial … Read More →
Large-scale research and genetic studies concur that familial hypercholesterolemia (FH) is a common genetic condition that impacts all races and ethnicities. In fact, it is estimated that 1 in 250 individuals worldwide have FH. That means, each of us reading this FH Foundation blog probably knows … Read More →
So, what are some of the early signs of heart disease? And what should you do if you experience them? My advice, is to recommend that you seek medical attention, if you experience any of the following symptoms:
Chest Pain – often described as tightness, pressure, squeezing or aching beneath the … Read More →
Increasing screening for familial hypercholesterolemia is critical for finding the 85% of individuals who are not diagnosed today. The FH Foundation leads critical research to uncover some of the barriers for cascade screening, also known as family screening, and genetic testing in the United States.
Recently, … Read More →
You may have heard about Lipoprotein (a), Lp(a) or often referred to as “Lp little a.” Lp(a) is an independent risk factor for cardiovascular disease.The level of Lp(a) found in a person’s blood is entirely genetically predetermined. This means that unlike other cardiac risk factors, Lp(a) can’t … Read More →
Individuals with familial hypercholesterolemia (FH) were able to lower their cholesterol under FH specialty care, but many are still not meeting LDL-cholesterol targets, according to the FH Foundation’s CASCADE FH® Registry. In new research published in the October issue of Atherosclerosis, 52 … Read More →
Affordable prescription drugs are necessary so individuals can benefit from advances in medicine to treat conditions such as familial hypercholesterolemia. Medical research and innovation make it possible to actually prevent or delay heart disease in people born with FH. All it takes is early diagnosis … Read More →
We are constantly bombarded with information about risk and risk factors for heart disease. The numbers are often confusing, sometimes they are big (50 or 100 times the risk), sometimes they are small, and sometimes they are in percent form (20% higher, 300% higher). What does this information mean … Read More →
Editor’s note: Today, Mike Smith shares how high cholesterol and heart disease took a toll on his family for generations. Until the day he had a proper diagnosis of familial hypercholesterolemia, and he knew he could manage it.
My story goes back longer than I can remember. I have a great … Read More →