When You Have Both: Managing FH and High Lp(a)

When You Have Both: Managing FH and High Lp(a)

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March 24th was the first ever Lipoprotein(a) Awareness Day, and my conversations about it went something like this:
 
Me: Did you know today is Lp(a) Awareness Day?
Friend: What’s that?
Me: Elevated Lp(a) is a common genetic cholesterol disorder that I have.
Friend: Wait. I thought you had … Read More →


Family Heart Foundation Advocate for high Lipoprotein(a) - Gail

Dave R Advocate for Awareness for familial hypercholesterolemia

When all the warning signs are there, but a missed diagnosis leads to heart disease

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I lived with Familial Hypercholesterolemia (FH) for my whole life, but didn’t learn about my diagnosis until I was thirty-five (35) years old. There were so many warning signs along the way that were missed or ignored, and I want to share my story so that it doesn’t happen to someone else.
 
When … Read More →


Genetics, Heart Disease, and the Game of Life

Genetics, Heart Disease, and the Game of Life

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Everyone gets dealt their own hand of cards in the game of life. I inherited two different genetic disorders that each lead to atherosclerosis; a mutation that causes high Lipoprotein(a) and a mutation that causes high LDL Cholesterol (LDL-C) levels. This means that that from birth, high levels of … Read More →


New Research to Improve Screening for FH

Casey Walsh article in Circulation

Founder Effect - Franco American

Franco Americans, Familial Hypercholesterolemia and the Founder Effect

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Large-scale research and genetic studies concur that familial hypercholesterolemia (FH) is a common genetic condition that impacts all races and ethnicities. In fact, it is estimated that 1 in 250 individuals worldwide have FH. That means, each of us reading this Family Heart Foundation blog probably … Read More →


Early Signs of Heart Disease

Finding solutions to family screening for genetic risk for heart disease

Research published: improving family screening for individuals at genetic risk for heart disease

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Increasing screening for familial hypercholesterolemia is critical for finding the 85% of individuals who are not diagnosed today. the Family Heart Foundation leads critical research to uncover some of the barriers for cascade screening, also known as family screening, and genetic testing in the United … Read More →


Diagram of Lipoprotein little a