The FH Foundation is a true partnership of individuals and families impacted by FH, and the healthcare professionals who diagnose and treat FH. Together, we are raising awareness of FH, driving improved diagnosis, making sure individuals know their treatment options and opportunities for clinical … Read More
We are excited to see much more coverage of familial hypercholesterolemia (FH) in the news and social media. Recently, Grey Genetics featured Fran Emmolo Gamella on their podcast Patient Stories. Fran shared how she only understood her diagnosis of FH after a heart attack at 31. Unfortunately, it’s … Read More
Looking back, it was a sunny day in July that would change my family’s lives forever. My Dad had just returned to the house after going for a walk. His face appeared pale, and he could not seem to catch his breath. He had slight chest pains and mild back pains. My mom thought it would be … Read More
30 different workouts in 7 weeks. You may be wondering how I got here. Well, to answer that, we have to go back a little bit.
In 1966 (ok, we’re going back a lot), Lyle Hill was dancing with his wife at the Elk’s Club when he had a heart attack. He died that night at just 30 years old. His daughter, … Read More
Ask the Pharmacy – Are you getting the lowest cost for your PCSK9 inhibitor?
The manufacturers of both PCSK9 inhibitors, Praluent and Repatha, have lowered the list price for these cholesterol-lowering treatments by 60% to $5,850 per year. As we reported in February, the FH Foundation continues … Read More
Editor’s note: Today, Mike Smith shares how high cholesterol and heart disease took a toll on his family for generations. Until the day he had a proper diagnosis of familial hypercholesterolemia, and he knew he could manage it.
My story goes back longer than I can remember. I have a great … Read More
Familial Hypercholesterolemia can have devastating consequences – stealing people away from the people who love them. Today, we are honored to share this story from community member April Irene Donelson. April lost her fiancée to a sudden heart attack just months before they were to be married. … Read More