I have dreamt about my death, which makes me appreciate life more.
Growing up in Trinidad and Tobago, I was always aware that heart disease was prevalent in my family. I always considered it normal, as I knew so many families in my community that had lost loved ones at a young age to heart attacks … Read More →
My experience with Familial Hypercholesterolemia, or “FH,” started 30 years ago when I lost my father. I have very happy memories of him, even though I only had him for seven short years. He was a man in his 30’s with a family and a love for life. However, I also have memories of a sick man … Read More →
Everyone gets dealt their own hand of cards in the game of life. I inherited two different genetic disorders that each lead to atherosclerosis; a mutation that causes high Lipoprotein(a) and a mutation that causes high LDL Cholesterol (LDL-C) levels. This means that that from birth, high levels of … Read More →
Homozygous Familial Hypercholesterolemia then…
When I was diagnosed with homozygous form of familial hypercholesterolemia 10 years ago, after multiple bypass surgeries, the only up-to-date and optimistic information I could find on the internet was the Family Heart Foundation website. The rest was … Read More →
What is the impact of early diagnosis and appropriate treatment on disease management and longevity for individuals with familial hypercholesterolemia (FH) over the course of 45 years?
I answered this and many other questions in this research letter titled “Life by the Numbers: Living with Familial … Read More →
the Family Heart Foundation started 2021 off with an impactful Listening Session with the Food and Drug Administration (FDA) Center for Drug Evaluation and Research Division of Diabetes, Lipid Disorders, and Obesity (DDLO) on Homozygous Familial Hypercholesterolemia (HoFH) on January 4. Kate Robinson … Read More →
Four years ago, when I was out on my daily four-mile walk, I had a very strange sensation, come over my chest and neck. It only lasted a few minutes, so I continued on my walk. It was alarming, but not enough to make me stop or pay too much attention.
But later that day, when I was packing … Read More →
At age 30, Gail Titus found herself scared, bewildered, and heartbroken. Her father had a fatal heart attack at the age of 58. She wondered if the same thing might happen to her, but she convinced herself it wouldn’t. She never smoked. She wasn’t overweight like her father had been. She wasn’t … Read More →
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
Disclaimer: This entry is meant to give you some ideas about what to do if you’re bored during the pandemic (or when you can’t leave the house much). Always listen to the medical officials’ recommendations about … Read More →
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
You will learn fast that when it comes to FH you very often don’t take just one medication. You take several. You don’t follow up with just one test. You follow up with multiple tests (blood tests, imaging, … Read More →
