On May 7, 2019 FH Advocate, April Donelson, chose to spend her birthday on Capitol Hill, advocating to make familial hypercholesterolemia (FH) a public health priority with Florida and Texas Congressional leaders. April shared “Ryan’s story” to make sure everyone understands the importance … Read More
Looking back, it was a sunny day in July that would change my family’s lives forever. My Dad had just returned to the house after going for a walk. His face appeared pale, and he could not seem to catch his breath. He had slight chest pains and mild back pains. My mom thought it would be … Read More
Affordable prescription drugs are necessary so individuals can benefit from advances in medicine to treat conditions such as familial hypercholesterolemia. Medical research and innovation make it possible to actually prevent or delay heart disease in people born with FH. All it takes is early diagnosis … Read More
Finding every individual with familial hypercholesterolemia (FH)
The U.S. healthcare system is failing to screen for and diagnose individuals with familial hypercholesterolemia (FH). In fact, 9 out of 10 individuals born with FH today are undiagnosed, putting them and their families at grave … Read More
30 different workouts in 7 weeks. You may be wondering how I got here. Well, to answer that, we have to go back a little bit.
In 1966 (ok, we’re going back a lot), Lyle Hill was dancing with his wife at the Elk’s Club when he had a heart attack. He died that night at just 30 years old. His daughter, … Read More
We are constantly bombarded with information about risk and risk factors for heart disease. The numbers are often confusing, sometimes they are big (50 or 100 times the risk), sometimes they are small, and sometimes they are in percent form (20% higher, 300% higher). What does this information mean … Read More
Ask the Pharmacy – Are you getting the lowest cost for your PCSK9 inhibitor?
The manufacturers of both PCSK9 inhibitors, Praluent and Repatha, have lowered the list price for these cholesterol-lowering treatments by 60% to $5,850 per year. As we reported in February, the FH Foundation continues … Read More
Editor’s note: Today, Mike Smith shares how high cholesterol and heart disease took a toll on his family for generations. Until the day he had a proper diagnosis of familial hypercholesterolemia, and he knew he could manage it.
My story goes back longer than I can remember. I have a great … Read More
Statins are one of the longest and most well-studied drugs that definitively provide positive results. In fact, the most-effective statins reduce cholesterol by 55-50% at their maximum dose. In addition, statins are cost-effective — 6 of the 7 statins are generic. While statins save lives world-wide, … Read More
Today, 23andMe announced a new Genetic Health Risk Report for Familial Hypercholesterolemia.
Now, individuals who are 23andMe Health+ Ancestry service customers will be alerted if they have one of 24 of the more common gene variants for Familial Hypercholesterolemia (FH) that can be analyzed. Since … Read More