Individuals with familial hypercholesterolemia (FH) were able to lower their cholesterol under FH specialty care, but many are still not meeting LDL-cholesterol targets, according to the FH Foundation’s CASCADE FH® Registry. In new research published in the October issue of Atherosclerosis, 52 … Read More
Researchers at the Mayo Clinic wanted to know if Twitter could help build awareness of familial hypercholesterolemia (FH). The answer was an emphatic yes. In their article published in leading cardiovascular journal, Circulation: Genomic and Precision Medicine, the team compared activity on social … Read More
New research from the FH Foundation highlights that individuals at high risk for cardiovascular events, including those with familial hypercholesterolemia (FH) or atherosclerotic cardiovascular disease (ASCVD), experienced more heart attacks, strokes and other cardiovascular events when they were … Read More
On May 7, 2019 FH Advocate, April Donelson, chose to spend her birthday on Capitol Hill, advocating to make familial hypercholesterolemia (FH) a public health priority with Florida and Texas Congressional leaders. April shared “Ryan’s story” to make sure everyone understands the importance … Read More
Looking back, it was a sunny day in July that would change my family’s lives forever. My Dad had just returned to the house after going for a walk. His face appeared pale, and he could not seem to catch his breath. He had slight chest pains and mild back pains. My mom thought it would be … Read More
Affordable prescription drugs are necessary so individuals can benefit from advances in medicine to treat conditions such as familial hypercholesterolemia. Medical research and innovation make it possible to actually prevent or delay heart disease in people born with FH. All it takes is early diagnosis … Read More
Finding every individual with familial hypercholesterolemia (FH)
The U.S. healthcare system is failing to screen for and diagnose individuals with familial hypercholesterolemia (FH). In fact, 9 out of 10 individuals born with FH today are undiagnosed, putting them and their families at grave … Read More
30 different workouts in 7 weeks. You may be wondering how I got here. Well, to answer that, we have to go back a little bit.
In 1966 (ok, we’re going back a lot), Lyle Hill was dancing with his wife at the Elk’s Club when he had a heart attack. He died that night at just 30 years old. His daughter, … Read More
We are constantly bombarded with information about risk and risk factors for heart disease. The numbers are often confusing, sometimes they are big (50 or 100 times the risk), sometimes they are small, and sometimes they are in percent form (20% higher, 300% higher). What does this information mean … Read More
Ask the Pharmacy – Are you getting the lowest cost for your PCSK9 inhibitor?
The manufacturers of both PCSK9 inhibitors, Praluent and Repatha, have lowered the list price for these cholesterol-lowering treatments by 60% to $5,850 per year. As we reported in February, the FH Foundation continues … Read More