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One Second.

It’s true what they say. It only takes one second for your entire life to change. Everything is different. Uncertainty is the new normal. The day our six-year-old daughter was diagnosed with Homozygous Familial Hypercholesterolemia, a rare disease that can lead to heart disease, … Read More


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Boston Family Forum

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The FH Foundation hosted an FH Family Forum in Boston on December 10. This event brought together an amazing group of individuals who have Familial Hypercholesterolemia (FH), their family members, and FH experts Dr. Sarah de Ferranti of Boston Children’s Hospital and Dr. Linda Hemphill of Massachusetts … Read More


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Homozygous FH Community Gathering

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An amazing group of individuals and family members affected by Homozygous FH gathered together for dinner and conversation on December 2 in the Washington, DC area. The FH Foundation hosted the event, bringing together individuals from across the US with HoFH, and parents whose children have HoFH. Dr. … Read More


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