Since its establishment seven years ago, the FH Foundation has studied the 1998 World Health Organization (WHO) Report on Familial Hypercholesterolemia (FH). The 11 recommendations within the document guide our strategic efforts to address the large gaps in diagnosis and care of FH in the United States. … Read More
The International Atherosclerosis Society (IAS) and the FH Foundation, a patient-centered nonprofit organization dedicated to research, advocacy, and education of familial hypercholesterolemia (FH), are pleased to announce a partnership to improve awareness of FH and elevate FH on the global policy stage. … Read More
I was one of the first people to sign up for the FH Foundation’s 2018 Race for FH. I’m racing in memory of my father, who lost his lifelong battle with FH in 2017, but also in honor of my brother and sister, and my niece and nephew, who also live with FH. Even though my niece, Greer, and nephew, … Read More
The FH Foundation’s unique “Do-It-Yourself” fundraising “race” kicked off on August 11 and will cross the finish line on September 24 – FH Awareness Day. People across the country are choosing their own physical challenge and are raising funds to ensure that those with FH have longer, healthier … Read More
The FH Foundation is pleased to announce that the Journal of the American College of Cardiology has just published a consensus statement on the application of genetic testing in diagnosing familial hypercholesterolemia (FH). A culmination of a two-year effort led by the FH Foundation and authored … Read More
The FH Foundation, a global research and advocacy organization, today announced that Dr. Samuel Gidding will join as chief medical officer. Dr. Gidding brings more than 30 years of experience in preventative cardiology, pediatric cardiology and heart failure/transplantation with a strong focus in familial … Read More
By Kari Roundy
I first met my FH Specialist, Dr. Seth Baum, in Jan 2016, at the urging of my primary care doctor. I’m so glad I did.
Earlier in my life, I had not taken my cholesterol levels seriously. I believed I could manage my high LDL cholesterol with diet alone and I avoided taking medication. … Read More
By Ray Shipman
My story starts back when I was 14 years old. My 34-year old mother had her cholesterol tested during a physical. When the lipid panel came back, it showed that her cholesterol was over 500. The doctors notified her that her children should be tested. My cholesterol level came back … Read More
This week I heard about a young family who lost their husband and father, suddenly and right in front of their eyes. He had a massive heart attack and was gone. Sadly, working for the FH Foundation, I have heard this story too many times. It’s especially heartbreaking because we know that when heart … Read More
Clinical trials are research studies designed to test whether a medical intervention, treatment, or device is safe and effective. The success of clinical trials and the potential availability of new treatments for FH depend on the participation of individuals with familial hypercholesterolemia (FH), … Read More
