Living with high cholesterol or familial hypercholesterolemia may cause you to be on alert for nutrition/health related topics and rightly so. For those with FH, cholesterol lowering medication(s) is required to lower your cholesterol and LDL-C levels. You can’t eat your way to those high levels … Read More
The FH Foundation started 2021 off with an impactful Listening Session with the Food and Drug Administration (FDA) Center for Drug Evaluation and Research Division of Diabetes, Lipid Disorders, and Obesity (DDLO) on Homozygous Familial Hypercholesterolemia (HoFH) on January 4. Kate Robinson and … Read More
It is with deep sadness that we share that Dr. William Neal, former Chairman of the Board of the FH Foundation and Professor Emeritus of Pediatrics at West Virginia University, passed away on January 1, 2021.
The FH Foundation Team and Board of Directors are extremely grateful for the contributions … Read More
To our community,
At the close of this tumultuous year, there are many reasons to grieve. The coronavirus has taken hundreds of thousands of people before their time. Most of us have had to make peace with historic levels of uncertainty and less in-person human interaction. Some of us are enduring financial … Read More
You’re invited to join the FH Foundation for our annual FH Community Forum “Inherited High Cholesterol: Journeys to FH Diagnosis and Care.” This year’s event will be held virtually on Saturday, December 12 at 12:00 pm ET.
The FH Community Forum is open to individuals with familial hypercholesterolemia … Read More
If you have Familial Hypercholesterolemia (FH) or if you have atherosclerotic cardiovascular disease (ASCVD), or both, please take some time to fill out this questionnaire about living with High Cholesterol for the Institute for Clinical and Economic Review (ICER).
Sharing your experience can make a … Read More
We are excited to announce new data from the FH Foundation’s CASCADE FH® Registry was published in the The Journal of Pediatrics. This research helps us understand the progress that has been made in the treatment and care of children with familial hypercholesterolemia (FH) in specialty … Read More
Let’s face it 2020 is certainly going to be a year to remember for all of us. For one, many of us will be celebrating the holidays differently and hopefully on a smaller scale. For me, I’ll be cooking an entire Thanksgiving Dinner for my family of four instead of attending the usual … Read More
The FH Foundation is pleased to report that the first-ever FH Advocacy Group in Iraq was launched on May 22, 2020. Ms. Fatima Lahmood, a strong FH warrior living with Familial Hypercholesterolemia (FH) and a pharmacy student, has taken on the leadership role as patient representative, working with … Read More
Increasing screening for familial hypercholesterolemia is critical for finding the 85% of individuals who are not diagnosed today. The FH Foundation leads critical research to uncover some of the barriers for cascade screening, also known as family screening, and genetic testing in the United States.
Recently, … Read More