What is Familial Hypercholesterolemia (FH)?
Wall Street Journal, June 20th, 2017
In a little box on the bottom of page A11 in the Health section of the Wall Street Journal yesterday, this important question finally appeared in the press.
The FH Foundation was happy to answer that question in depth … Read More
There’s nothing more important than family. However, as life gets busy, and we get lost in the weeds of our everyday lives, we often lose site of what really matters and take for granted what we have. It took my daughter, Avery, being diagnosed with Homozygous Familial Hypercholesterolemia for me to … Read More
FH Advocates for Awareness headed to Capitol Hill to make sure their elected representatives #KnowFH.
The FH Foundation® trained a new group of FH Advocates June 3rd-4th in Washington D.C. After two days of intense preparation, these dedicated volunteers visited 24 Congressional offices on Capitol … Read More
The biggest barrier to care is lack of diagnosis. We are hard at work advocating for you and strive to reduce those barriers so that families with FH can live longer, healthier lives free from heart disease.
Groundbreaking Study: … Read More
The FH Foundation today announced a partnership with BMC Racing Team to raise awareness of a genetic disorder known as familial hypercholesterolemia (FH).
FH is the most common cause of early heart attacks and premature coronary heart disease, impacting people of every race and ethnicity. More than … Read More
FH Foundation Director of Policy and Outreach, Cat Davis Ahmed, spoke on a panel at the Network for Excellence in Health Innovation (NEHI) Annual Meeting April 26 to discuss the potential for paying for innovative, high-impact therapies through novel arrangements in the healthcare system to share risks … Read More
Pasadena, Calif. – The Familial Hypercholesterolemia Foundation today published a study in Circulation revealing high rejection rates for PCSK9 inhibitors in the two at-risk patient populations approved for this novel cholesterol-lowering class of therapy.
The FH Foundation’s FOCUS (FH Optimal … Read More
When I was approximately seven years old, my family was referred to Boston Children’s Hospital for evaluation of our cholesterol levels. My father, who was in his mid-forties, had just had a heart attack. This was in the early 1970s, when Brown and Goldstein were embarking upon their remarkable and … Read More
I had no idea I carried a potentially fatal genetic mutation, because we never talked about our family history.
My mother was a foster child from a young age. She never spoke about her parents, probably because she didn’t know much about them. My mother was married young. My older half brother … Read More
“Having the opportunity to participate in a hands-on strategy session with the American Heart Association around targeting lowering cholesterol was extremely important. As an FH Advocate, it’s important to have a voice in educating the public, increasing awareness, and sharing the patient perspective.” … Read More
