Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
You will learn fast that when it comes to FH you very often don’t take just one medication. You take several. You don’t follow up with just one test. You follow up with multiple tests (blood tests, imaging, … Read More
When the FH Foundation asked me to write Avery’s story for Rare Disease Day, I felt an immense amount of pressure to get it just “right.” It’s such an important story and I know with this fast-paced world, getting people to stop scrolling and read past the title would be difficult. What does … Read More
Tom knew, for as long as he could remember, that almost everyone in his family had very high cholesterol. Both of Tom’s uncles had multiple heart surgeries and strokes before the age of 50. That was normal for his family.
When Tom had a heart attack at the age of 29, he and his wife Rachelle were … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
In some ways, 4 years seems like yesterday. And in most of others, the past 4 years since my open-heart surgery feel like a lifetime. I am not the same person I left on the other edge of that precipice. I never will be. … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
Happy New Year to all and here’s to much health, first. Here’s to everything else, second!
If you have read my blog before and if you are an FH patient yourself, you already heard me say this and you already know … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
Having a more-or-less terminal disease (isn’t life one, too?) makes you appreciate every new day that lies in front of you. From the first breath you take when your eyes peel open and you look at the window … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
How FH Has Affected Four Generations of Our Family
When some people are first diagnosed with FH, they have a hard time believing that they must be on medication to ensure protection of their arteries. There are folks … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
How in the blue blazes has it come to be December already?? I cannot believe that my last blog was in July! We were eating peaches and getting our skin scorched in the sun and now, we’re watching the Christmas tree … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
Although my cardiologist will tell you that I know more about cholesterol than he does, this is truly not a rhetorical question. I am really looking for the answer to it.
After 36 years of watching these numbers, … Read More
We are excited to see much more coverage of familial hypercholesterolemia (FH) in the news and social media. Recently, Grey Genetics featured Fran Emmolo Gamella on their podcast Patient Stories. Fran shared how she only understood her diagnosis of FH after a heart attack at 31. Unfortunately, it’s … Read More