Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
“Up and at’em!” – is what my surgeon said to me the day I came out of ICU, two days after my surgery. Three years ago tonight I came out of my open heart surgery with a new mechanical aortic valve, a new … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
I follow a number of forums and pages dedicated to FH and heart disease. Let me just say first that I am grateful that they exist. Back when I started this blog, there was no information out there about our disease and … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
It’s been a while since we chatted. Life seems to have sped up there for the past few months. I guess it’s good when you make plans but even better when you get to carry them out. But delay no longer.
I … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
I was diagnosed with FH when I was 8. That was in 1983, and it was back in Romania. Back there, it was a very rare and obscure disease, but they at least knew enough to know it is inherited from a parent and that you … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
So, I am back in cardiac rehab – two years and 6 months after my surgery. It feels odd, and a bit tardy, but I only have so much energy to argue with my cardiologist.
The reason he sent me back is because I still … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
Caveat: this is not the norm!
I have talked about this before (https://livingwithfh.blogspot.com/2017/04/a-helpful-health-insurance-alas-there.html), and as anyone taking Praluent or Repatha knows: ordering a new … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
I have been pondering upon life and the resilience we have, the stubbornness we have come equipped with from birth to embrace it. To fight on. To stay on the path of making ourselves stronger and to live.
This piece … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
If you might remember and follow this saga, my new cardiologist suggested that I needed to have a heart catheterization, to find out more details about the status of the blood flow in my heart (http://livingwithfh.blogspot.com/2018/04/more-questions-than-answers.html) … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
I was given a rare opportunity this spring, to speak to a class of Medical and Pharmacy students at the Medical School in my home town of Iasi, Romania. I did not even blink when my friend, who teaches English there, … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
Sometimes I wonder: “What is purpose of seeking to feel better? Have I not learned that I will never ever feel like I am running on 100% capacity, firing on all cylinders?! My HoFH will continue to do damage, my heart … Read More