2014 FH Global Summit thoughts from Christian Jacobs, FH Foundation Board Member and HoFH Advocate for Awareness

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It truly is amazing to think that The FH Foundation was formed just three years ago and now here we are wrapping up the Second Annual FH Global Summit. As a patient, it is exciting and encouraging to see physicians, researchers, pharmaceutical companies, patients, and caregivers come together to help … Read More


Website for Rare Disease Caregivers


Feb 28th – Rare Disease Day (worldwide)

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The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The FH Foundation supports Rare Disease Day in honor of those with Homozygous Familial Hypercholesterolemia – the rarest but severest … Read More




Familial Hypercholesterolemia

NSGC Conference

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Genetic Counselor Amy Sturm, spoke on Familial Hypercholesterolemia at the NSGC (National Society of Genetic Counselors) annual education conference in Anaheim, CA last week.  Approximately 1,800 genetic counselors and other members of NSGC attended the conference, and many were excited about how … Read More



ACC Think Tank

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Josh Knowles, CMO of the FH Foundation, and Katherine Wilemon, President of the FH Foundation, participated in the ACC LDL-C: Address the Risk Think Tank October 10th in Washington DC.  The goal of the LDL-C: Address the Risk Think Tank was to bring together representatives from medical specialty societies … Read More


FH Awareness Day Tweet-a-Thon

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The FH Foundation (FHF) hosted their first-ever, Tweet-a-Thon on Tuesday, September 24th, 2013 for FH Awareness Day. Participants in the questions and answer Twitter stream, included Dr. Seth Baum from Preventive Cardiology Inc., FH Foundation President/Founder, Katherine Wilemon, FHF Board Member, Christian … Read More