Publications and Articles

FH Foundation Publications

• Rationale and Design of the Familial Hypercholesterolemia Foundation CAscade SCreening for Awareness and DEtection of Familial Hypercholesterolemia Registry | PDF Version – Published in the American Heart Journal
• Reducing the Burden of Disease and Death from Familial Hypercholesterolemia: A call to Action | PDF Version – Published in the American Heart Journal
• Familial Hypercholesterolemia. In: Rare Disease Database | PDF Version – Published in the National Organization for Rare Disorders (NORD)
• Underutilization of cascade screening for familial hypercholesterolemia | PDF Version – Published in Clinical Lipidology (*Requires a paid subscription to view)
• Initial Results from the CASCADE-FH Registry: CAscade Screening for Awareness and Detection of Familial Hypercholesterolemia | PDF Version – Published in Journal of American College of Cardiology (March 2015)
• The Rationale and Design of the CASCADE FH Registry: Expert Analysis | PDF Version – Published in American College of Cardiology (April 2015)
• Diagnosing Familial Hypercholesterolemia (FH) in the United States: Results from the CASCADE FH Patient Registry | PDF Version – Published in Journal of Clinical Lipidology (May/June 2015)
• Familial Hypercholesterolemia and the 2013 American College of Cardiology/American Heart Association Guidelines: Myths, Oversimplification and Misinterpretation versus Facts | PDF Version – Published in Circulation (August 2015) (*Requires a paid subscription to view)
• The Agenda for Familial Hypercholes- terolemia: A Scienti c Statement From the American Heart Association | PDF Version – Published in Circulation (October 2015)
• Treatment Gaps in Adults with Heterozygous Familial Hypercholesterolemia in the United States: Data from the CASCADE FH™ Registry | PDF Version – Published in Circulation (March 2016)
• Enough Evidence, Time to Act! | PDF Version – Published in Circulation (July 2016) (*Requires a paid subscription to view)
• Statins in Familial Hypercholesterolemia- Translating Evidence to Action | PDF Version – Published in Journal of American College of Cardiology (July 2016) (*Requires a paid subscription to view)
• US Physician Practices for Diagnosing Familial Hypercholester- olemia: Data from the CASCADE- FH Registry | PDF Version – Published in Journal of Clinical Lipidology (July 2016) (*Requires a paid subscription to view)
• Access to Non-Statin Lipid Lowering Therapies in Patients at High-Risk of Atherosclerotic Cardiovascular Disease | PDF Version – Published in Circulation (April 2017) (*Requires a paid subscription to view)

FH Articles

• High cholesterol in Family Means Relatives at Risk
• The Cards I Was Dealt – My Life With Familial Hypercholesterolemia by Mackenzie Ames, BA
• Familial hypercholesterolemia: Underdiagnosed, risks underappreciated; new treatments on horizon – Cardiology Today
• Familial Hypercholesterolemia: An Under-recognized but Significant Concern in Cardiology Practice
• Familial hypercholesterolemia is underdiagnosed and undertreated in the general population: guidance for clinicians to prevent coronary heart disease
• Familial Hypercholesterolemia: Underdiagnosed risks underappreciated new treatments on horizon
• Homozygous familial hypercholesterolemia: new insights and guidance for clinicians to improve detection and clinical management
• The Rationale and Design of the CASCADE FH Registry | Expert Analysis