About The Day

FH Awareness Day (est. 2012) is a campaign initiated by the FH Foundation to raise awareness of FH in the general public. This annual event is held on the September 24th, during National Cholesterol Education Month. Previous FH Awareness Day campaigns consisted of community outreach through local Patient Advocate events and media kit distribution to FH Foundation Affiliates. Social media campaigns, such as “Tweet-a-thons” with FH experts and FH patients are used to broaden the reach to an international audience.

FH Awareness Day 2017


2017 Race for FH (virtual run)
The FH community came together and raced to raise awareness for familial hypercholesterolemia (FH) on FH Awareness Day 2017. 1 in 250 individuals have FH, but 90% are undiagnosed. FH is the most common genetic cause of early heart disease.



2017 Tweetathon
Each year, to raise awareness for familial hypercholesterolemia (FH), we hold an annual tweetathon on FH Awareness Day. FH is the most common genetic disorder that causes early heart disease. FH causes high cholesterol from birth and can be easily managed with the right treatment options.


Raise Awareness, change the future.
Click below to learn more about our FH Awareness Day campaign.

mediakit tweetathon raceforfh billboard-campaign


Why it’s Important

Early diagnosis > Early Treatment > Saves Lives
Millions of people around the world do not know that they and their families are at severe risk for early heart disease, heart attacks, and even death. Each person diagnosed with FH can reduce their risk for heart disease by 80% with early appropriate treatment and therapy.

Let’s raise awareness to find and inform the 90% undiagnosed and prevent early heart disease:

  • FH is inherited high cholesterol. It is not caused by the food you eat. This also means that, in many cases, it is treated differently (usually more aggressively than lifestyle-induced high cholesterol)
  • Between 620,000 to 1.3 million people in the U.S. have FH. At least 90% of them have not been diagnosed
  • If left untreated, FH leads to atherosclerosis, coronary heart disease, and even death
  • Again, FH is inherited: if you have it, each of your first-degree relatives (parents, siblings, children) has a 50% chance of having it
  • 20% of heart attacks in people under 45 are caused by FH
  • In many cases, people with FH get misdiagnosed and do not receive the care they need. If you suspect you have FH, please consult your healthcare provider or find a lipid specialist


Get Involved:

If you have friends or family who have high cholesterol or you know someone who had a heart attack at an early age, please tell them about FH and ask them to join the FH Foundation.