Cat Davis Ahmed, FH Foundation Director of Outreach, participated in the National Health Council’s Value Rubric Roundtable on February 1 in Washington, DC.
The FH Foundation is working to have your voice heard in policy discussions that affect you. The question of value and access to treatments are important for people who are living with FH, and can have a real impact on diagnosis and care. Through our policy efforts, and with research generated by the CASCADE FH™ Registry, the FH Foundation is working to ensure that data, expertise, and experience specific to FH are incorporated into policy decisions. We have brought data and the FH patient voice to FDA Advisory Committee hearings on new treatments, submitted public comments on U.S. Preventive Services Task Force draft recommendations, and commented on the Institute for Clinical and Economic Review Report on PCSK9 inhibitors. We are committed to informing a better understanding of FH at all levels so that individuals living with all forms of familial hypercholesterolemia have access to the care they need to prevent early heart disease and live longer, healthier lives.