About the CASCADE FH® Registry
Familial Hypercholesterolemla (FH) is one of the most common life-threatening family disorders. If you have FH, at least someone else in your family also has FH. Individuals with FH remain vastly under-diagnosed and under-treated and are at an increased risk for heart disease and heart attacks at a very young age. However, FH is manageable with the right care.
OUR GOAL IS TO:
understanding of FH in the medical community and public domain.Examine
gaps in care for those living with FH.Improve
adherence to guideline-recommended treatments for FH
Put your health information in your hands
Track your heart health, medications, and more.
View reports about how your cholesterol levels and therapies change over time.
Contribute to ongoing research to better manage FH.
Learn from your information. You will have the tools to compare your FH health with others in the registry.
WHAT IS A REGISTRY?
A registry is a database where individuals can enter information about a certain disease. Registries enable individuals to become more involved in their own disease management. They are also a way to collect research data on diagnosis, individuals’ experiences, disease patterns and trends, as well as gaps in care. Registries help researchers increase the knowledge of a certain disease, ultimately leading to further improvement in health outcomes.
YOUR PRIVACY IS IMPORTANT TO US
The goal of the CASCADE FH® is to collect information on individuals with FH and their family members. The information is stored in a highly secure portal located on the FH Foundation website.Your information will be shared with our research partners in a de-identified manner. Your name and contact information will never be provided to any other person, group or organization without your expressed prior permission.