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Join the CASCADE FH® Registry
Improve the care of all those living with familial hypercholesterolemia
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About the CASCADE FH® Registry

Familial Hypercholesterolemla (FH) is one of the most common life-threatening family disorders. If you have FH, at least someone else in your family also has FH. Individuals with FH remain vastly under-diagnosed and under-treated and are at an increased risk for heart disease and heart attacks at a very young age. However, FH is manageable with the right care.

 
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Our goal is to:

Promote understanding of FH in the medical community and public domain. Examine gaps in care for those living with FH. Improve adherence to guideline-recommended treatments for FH

Put your health information in your hands

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Track your heart health, medications, and more.
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View reports about how your cholesterol levels and therapies change over time.
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Contribute to ongoing research to better manage FH.
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Learn from your information. You will have the tools to compare your FH health with others in the registry.
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What we hope to achieve:
  • Improve the quality of care for individuals living with FH
  • Advance the scientific understanding of FH
  • Increase the rate of FH diagnosis
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Answer three simple questions to see if you are eligible to join
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What is a registry?

A registry is a database where individuals can enter information about a certain disease. Registries enable individuals to become more involved in their own disease management. They are also a way to collect research data on diagnosis, individuals’ experiences, disease patterns and trends, as well as gaps in care. Registries help researchers increase the knowledge of a certain disease, ultimately leading to further improvement in health outcomes.

Your privacy is important to us

The goal of the CASCADE FH® is to collect information on individuals with FH and their family members. The information is stored in a highly secure portal located on the Family Heart Foundation website. Your information will be shared with our research partners in a de-identified manner. Your name and contact information will never be provided to any other person, group or organization without your expressed prior permission.