JOIN THE CASCADE FH REGISTRYTMSIGN UP
Improve the care of all those living with familial hypercholesterolemia
(CAscade SCreening for Awareness and DEtection of Familial Hypercholesterolemia)
About the CASCADE FH RegistryTM
Familial Hypercholesterolemla (FH) is one of the most common life-threatening family disorders. If you have FH, at least someone else in your family also has FH. Individuals with FH remain vastly under-diagnosed and under-treated and are at an increased risk for heart disease and heart attacks at a very young age. However, FH is manageable with the right care.
OUR GOAL IS TO:
Promote understanding of FH in the medical community and public domain.
Examine gaps in care for those living with FH.
Improve adherence to guideline-recommended treatments for FH.
Put your health information in your hands
Track your heart health, medications, and more.
View reports about how your cholesterol levels and therapies change over time.
Contribute to ongoing research to better manage FH.
Learn from your information. You will have the tools to compare your FH health with others in the registry.
WHAT WE HOPE TO ACHIEVE:
- Improve the quality of care for individuals living with FH
- Advance the scientific understanding of FH
- Increase the rate of FH diagnosis
Answer three simple questions to see if you are eligible to joinSIGN UP
WHAT IS A REGISTRY?A registry is a database where individuals can enter information about a certain disease. Registries enable individuals to become more involved in their own disease management. They are also a way to collect research data on diagnosis, individuals’ experiences, disease patterns and trends, as well as gaps in care. Registries help researchers increase the knowledge of a certain disease, ultimately leading to further improvement in health outcomes.
YOUR PRIVACY IS IMPORTANT TO USThe CASCADE FH RegistryTM is confidential and secure (HIPAA-compliant & HITRUST certified). We have partnered with Zilker Technology & Catalyze.io to build and operationalize it. Catalyze.io is one of the most trusted platforms for this work and has handled many large-scale healthcare sites. Your information will be shared with our research partners in a de-identified manner.Your name and contact information will never be provided to any other person, group or organization without your expressed prior permission.