1. Accuracy of Healthcare Professional Information.
2. FIND FH Content.
The trademarks, trade names and corporate logo displayed on FIND FH by the Foundation are the property of the Foundation. FIND FH may contain information and materials including but not limited to, text, software, photos, video, graphics, audio, images, or data (collectively, â€œMaterialsâ€) which are derived in whole or in part from information and materials supplied by and proprietary to Foundation and other sources, and which are protected by international copyright, trademark and other laws. For the avoidance of doubt, the entire selection, coordination, arrangement and â€œlook and feelâ€ of FIND FH and the Materials are copyrighted as a collective work under United States copyright laws.
Neither the FIND FH data nor the Materials may be modified, copied, reproduced, framed, displayed, transmitted, distributed, or otherwise exploited in any way or decompiled, reverse engineered or disassembled, except that you may view and print the Materials solely for personal, non-commercial informational, or internal business purposes, provided you keep intact all copyright, trademark and other proprietary notices and make no change in or deletion of author attribution. Access to FIND FH does not grant you any right, license or privilege to reproduce, publish or use any Material on FIND FH or any property of Foundation except as expressly set forth herein. Foundation and its third-party licensors retain all of its and their respective intellectual property rights in and to FIND FH and the Materials.
As a convenience to you, Foundation may provide links to websites owned or operated by other entities and persons. If you use these websites, you do so at your own risk. Foundation makes no warranties or representations regarding, and shall not be liable or responsible for, any linked websites, your use of such sites, or the comprehensiveness or accuracy of information or materials appearing thereon or any products, publications, subject matter or services described thereon. Furthermore, links do not imply that Foundation sponsors, endorses or is affiliated or associated with such sites, or that any linked website is authorized to use any trademark, trade name, logo or copyright of Foundation.
3. Use of the FIND FH.
By using FIND FH, you agree that you are solely responsible for maintaining the confidentiality of your account information, including your password, and for any and all activity that occurs under your account and you agree to notify the Foundation immediately of any unauthorized use of your account or password. You may not use the account, user name or password of any other individual or Foundation at any time without the express written permission and consent of the holder of the account, user name or password. The Foundation will not be liable for any loss or damage arising from your failure to comply with this Section 4.
5. Disclaimer; Limitation of Liability.
The Foundationâ€™s goal is to provide complete, accurate, and up-to-date information on FIND FH. Unfortunately, it is not possible to ensure that any website is completely free of human or technological errors. FIND FH may contain typographical mistakes, inaccuracies, or omissions, and some information may not be complete or current. The Foundation therefore reserves the right to correct any errors, inaccuracies or omissions (including after a request for information or an application has been submitted) and to change or update information at any time without prior notice.
FIND FH DOES NOT PROVIDE MEDICAL ADVICE AND IS NOT INTENDED TO BE RELIED UPON FOR MEDICAL DIAGNOSIS, SERVICES OR TREATMENT. USE OF FIND FH IS NOT THE PRACTICE OF MEDICINE.
FIND FH AND INFORMATION HEREIN ARE PROVIDED â€œAS ISâ€, â€œWITH ALL FAULTSâ€ AND â€œAS AVAILABLE,â€ AND NEITHER FOUNDATION NOR ITS AFFILIATES OR LICENSORS MAKE ANY REPRESENTATIONS OR WARRANTIES OF ANY KIND, WHETHER EXPRESS, IMPLIED, STATUTORY OR OTHERWISE, AND THE FOUNDATION AND ITS LICENSORS SPECIFICALLY DISCLAIM ALL IMPLIED WARRANTIES, INCLUDING, BUT NOT LIMITED TO ANY WARRANTIES OF ACCURACY, NON-INFRINGEMENT, MERCHANTABILITY, TIMELINESS, COMPLETENESS OR FITNESS FOR A PARTICULAR PURPOSE, TO THE MAXIMUM EXTENT PERMITTED BY APPLICABLE LAW.
7. Copyright Infringement.
In accordance with the Digital Millennium Copyright Act (â€œDMCAâ€) (http://lcweb.loc.gov/copyright/), the Foundation has designated an agent to receive notifications of alleged copyright infringement associated with FIND FH. The Foundation will, upon receiving proper notice as set forth below, use commercially reasonable efforts to investigate notices of copyright infringement and take appropriate action under the DMCA. If you believe that your copyrighted work or the copyrighted work of another party is being infringed, please notify the copyright agent at firstname.lastname@example.org or through the address set forth at the end of this page. When notifying the Foundation of the alleged copyright infringement, all of the following information must be included: (a) A physical or electronic signature of a person authorized to act on behalf of the owner of the copyright interest that is claimed to have been infringed; (b) identification of the copyrighted work alleged to have been infringed; (c) a description of the material that is claimed to be infringing and information sufficient to locate the material on FIND FH; (d) information sufficient to contact the complaining party, such as a physical address, telephone number, and, if available, an electronic mail address; (e) a statement that the complaining party has a good faith belief that the use of the material in the manner complained of is not authorized by the copyright owner, its agent, or the law; and (f) a statement that the information in the notification is accurate and, under penalty of perjury, that the complaining party is authorized to act on the copyright ownerâ€™s behalf.
If material is believed in good faith by the Foundation to infringe a copyright or otherwise violate any intellectual property rights, the Foundation will remove or disable access to any such material.
8. Your Personal Information.
Along with the information you provide in creating your account, we may collect non-personal information about the computer, mobile device or other device you use to access FIND FH, such as IP address, geolocation information, unique device identifiers, browser type, browser language and other transactional information.
To the extent that you provide any information, including but not limited to personal information to the Foundation or its representatives, you acknowledge and agree that you do so at your own risk, and represent, warrant and covenant that (i) you are providing only your own information or the information of others which you are authorized to provide to third parties; and (ii) the use of such information by the Foundation will not infringe upon or misappropriate the intellectual property rights or otherwise violate the rights of any third parties, or violate any applicable law, rule or regulation.
You have a right to know about the personal information that we hold about you, including the right to correct, amend or delete the information that we have on file if it is incorrect. If you wish to exercise these rights please contact us by email or postal mail at the addresses below.
9. Use and Disclosure of Personal Information.
The personal information and data collected by FIND FH are used in a variety of ways: 1. To understand our Usersâ€™ (demographic, location, condition/disease state, symptom information, patterns of utilization, etc.) 2. To send surveys, materials, clinical trial information, etc., from the Foundation to you about FH, FIND FH, and the Foundation, as well as from some of our 3rd party partners, including health associations, advertisers, pharmaceutical companies, etc. 3. The Foundation reserves the right to share and analyze the aggregate, anonymous clickstream data collected by FIND FH along with information that aligns with these data for purposes of analytics and market research. 4. The Foundation may disclose information if required to do so by law or if the Foundation in good faith believes that such action is necessary to (a) comply with the law or with legal process; (b) protect and defend the Foundationâ€™s rights and property; (c) protect against misuse or unauthorized use of FIND FH; or (d) protect yourpersonal safety or property of that of others. Please note that the Foundation may not provide you with notice prior to disclosure in such cases. 5. As we continue to develop FIND FH, we may merge or partner with other companies or businesses, and in so doing, transfer your information as part of the merger. In such transactions, your information may be among the transferred assets.
10. Do Not Track.
11. Opt Out and Changes to Personal Information.
BECAUSE USE OF FIND FH REQUIRES THE ARBITRATION OF ANY CLAIMS OR DISPUTES EXISTING BETWEEN THE PARTIES, NEITHER PARTY WILL HAVE THE RIGHT TO PURSUE THAT CLAIM IN COURT OR BEFORE A JUDGE OR JURY OR TO PARTICIPATE IN A CLASS ACTION OR ANY OTHER COLLECTIVE OR REPRESENTATIVE PROCEEDING. THE ARBITRATORSâ€™ DECISION WILL BE FINAL AND BINDING. OTHER RIGHTS THAT EITHER PARTY WOULD HAVE IF SUCH PARTY WENT TO COURT, INCLUDING WITHOUT LIMITATION THE RIGHT TO CONDUCT DISCOVERY OR TO APPEAL, MAY BE LIMITED OR UNAVAILABLE IN ARBITRATION.
14. Contact Information.
The FH Foundation
959 East Walnut Street, Suite 220
Pasadena, CA 91106
Through a partnership with a national claims vendor, the FH Foundation can identify patients with probable FH in a HIPAA compliant manner, ensuring that clinicians are alerted to probable FH patients in their practice while patient identities remain de-identified to the foundation.
- Stanford Medicine
- University of Pennsylvania Health System
- The Ohio State University Wexner Medical Center
- Geisinger Health System