ICD-10 Coordination and Maintenance Committee hears public comments on including distinct diagnostic codes for FH

On March 19, representatives from The FH Foundation were at the Centers for Disease Control to express support for the inclusion of diagnostic codes for heterozygous familial hypercholesterolemia, homozygous familial hypercholesterolemia and family screening for FH. 

Dr. Josh Knowles, Chief Medical Officer, Dave Pickhardt, Chairman of the Board and Cat Davis Ahmed, Patient Advocate each spoke at the hearing.   In addition, a representative of the American Academy of Pediatrics commented, calling the proposed codes “exceedingly valuable” and expressing the Academy’s “full support.”   

You can watch Josh, Dave and Cat on the YouTube clip found here: Flowchart_image_10.21

In January, The FH Foundation and the National Lipid Association submitted a joint proposal for the new ICD-10 codes. The ICD-10 Coordination and Maintenance Committee (a joint committee of the CDC’s National Center for Health Statistics and the Centers for Medicare and Medicaid Services (CMS)) is currently reviewing the joint proposal from The FH Foundation and the National Lipid Association. 


To learn more about the proposal and what you can do to show your support, please email us at staff@thefhfoundation.org.

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