First Iraqi Advocacy Group

My Journey with FH and Heart Disease

Finding solutions to family screening for genetic risk for heart disease

Research published: improving family screening for individuals at genetic risk for heart disease

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Increasing screening for familial hypercholesterolemia is critical for finding the 85% of individuals who are not diagnosed today. The FH Foundation leads critical research to uncover some of the barriers for cascade screening, also known as family screening, and genetic testing in the United States.
Recently, … Read More


Cardiac Complications and COVID-19 Banner

Lipoprotein(a) and COVID-19

Lipoprotein(a) and COVID-19

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As the days go by we are learning more about the cardiac complications related to infection with COVID-19. One concern that has emerged is the potential increased cardiac risk for people with elevated Lipoprotein(a) levels, or Lp(a) for short. As you likely know, people with familial hypercholesterolemia … Read More



FH Treatments and COVID-19

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As coronavirus virus disease 2019 (COVID-19) continues to spread in the United States and worldwide, the FH Foundation has received several questions related to the risk posed by COVID 19 for people with familial hypercholesterolemia (FH) and potential concerns about FH treatments at this time.
People … Read More



My Journey with FH and Heart Disease

Avery - 11 year old girl with HoFH

HoFH means . . . HOPE

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When the FH Foundation asked me to write Avery’s story for Rare Disease Day, I felt an immense amount of pressure to get it just “right.” It’s such an important story and I know with this fast-paced world, getting people to stop scrolling and read past the title would be difficult. What does … Read More


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