Why are FH patients paying a higher price for PCSK9 inhibitor treatment when a lower price is available, and what can we do about it?

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Affordable prescription drugs are necessary so individuals can benefit from advances in medicine to treat conditions such as familial hypercholesterolemia. Medical research and innovation make it possible to actually prevent or delay heart disease in people born with FH. All it takes is early diagnosis … Read More



Blog from FH Advocate for Awareness - Mackenzie

Racing to End Family Heart Disease – Me, Grandpa Lyle and the Race for FH

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30 different workouts in 7 weeks. You may be wondering how I got here. Well, to answer that, we have to go back a little bit.
In 1966 (ok, we’re going back a lot), Lyle Hill was dancing with his wife at the Elk’s Club when he had a heart attack. He died that night at just 30 years old. His daughter, … Read More


Risk factors for heart disease


Michael & Amelia - FH Advocates for Awareness


genetic testing for familial hypercholesterolemia

Ryan’s Story

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Familial Hypercholesterolemia can have devastating consequences – stealing people away from the people who love them. Today, we are honored to share this story from community member April Irene Donelson. April lost her fiancée to a sudden heart attack just months before they were to be married. … Read More


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