We are excited to announce new data from the FH Foundation’s CASCADE FH® Registry was published in the The Journal of Pediatrics. This research helps us understand the progress that has been made in the treatment and care of children with familial hypercholesterolemia (FH) in specialty … Read More →
FH News & Blog
Let’s face it 2020 is certainly going to be a year to remember for all of us. For one, many of us will be celebrating the holidays differently and hopefully on a smaller scale. For me, I’ll be cooking an entire Thanksgiving Dinner for my family of four instead of attending the usual … Read More →
The FH Foundation is pleased to report that the first-ever FH Advocacy Group in Iraq was launched on May 22, 2020. Ms. Fatima Lahmood, a strong FH warrior living with Familial Hypercholesterolemia (FH) and a pharmacy student, has taken on the leadership role as patient representative, working with … Read More →
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
Disclaimer: This entry is meant to give you some ideas about what to do if you’re bored during the pandemic (or when you can’t leave the house much). Always listen to the medical officials’ recommendations about … Read More →
Increasing screening for familial hypercholesterolemia is critical for finding the 85% of individuals who are not diagnosed today. The FH Foundation leads critical research to uncover some of the barriers for cascade screening, also known as family screening, and genetic testing in the United States.
Recently, … Read More →
COVID-19 continues to dominate the news. As I write this blog the United States is reporting 793,919 confirmed cases and 42,474 deaths – the numbers change daily. Lots of data is emerging from China, Italy, and the hardest hit places in the United States such as New York City. While this … Read More →
As the days go by we are learning more about the cardiac complications related to infection with COVID-19. One concern that has emerged is the potential increased cardiac risk for people with elevated Lipoprotein(a) levels, or Lp(a) for short. As you likely know, people with familial hypercholesterolemia … Read More →
The world has shifted dramatically in the last few weeks to respond to coronavirus (COVID-19). We are working, home schooling, and keeping our families “safe at home.”
The mission of the FH Foundation – to save lives across generations – remains the same. Our work in familial hypercholesterolemia … Read More →
As coronavirus virus disease 2019 (COVID-19) continues to spread in the United States and worldwide, the FH Foundation has received several questions related to the risk posed by COVID 19 for people with familial hypercholesterolemia (FH) and potential concerns about FH treatments at this time.
People … Read More →
We find ourselves in one of the most challenging situations in world history. It is crucial for all of us to follow the guidance on handling the coronavirus (COVID-19) provided by the CDC, which is updated daily. This said, it is important for our FH community to be aware of the … Read More →