Dedicated to advocating for individuals with hereditary cardiovascular disorder, Familial Hypercholesterolemia, the Family Heart Foundation proudly welcomes three new board members: Ted Tussing, Josh Knowles, MD, PhD, and Vaughn Davis.Online PR News – 03-January-2013 –It’s a disease that 80% … Read More →
On Dec 24th, 2012 Aegerion Pharmaceuticals, Inc. announced that the U.S. Food & Drug Administration (FDA) approved new treatment for Homozygous Familial Hypercholesterolemia (HoFH) called JUXTAPID™ (lomitapide). The capsules are intended as an adjunct to a low-fat diet and other cholesterol-lowering … Read More →
Doctors’ failures caused our daughter’s deathA schoolgirl was not given a simple blood test despite warning signs that she had dangerous cholesterol levels – and thousands more adults and children are at risk. Jane Feinmann reports . John and Amanda Wingett at home. Their daughter … Read More →
In September, the Family Heart Foundation participated in the “New Strategies in Public Health Genomics” conference at the Centers for Disease Control (CDC). Experts and key stakeholders, including advocates, community leaders and clinicians, came together to discuss evidence-based genomic … Read More →
Via Bloomberg
Original story published on October 8, 2012
Christian Jacobs, 20, was diagnosed with homozygous familial hypercholesterolemia, a rare genetic disease, at age 2. It led his cholesterol levels to be 4 times higher that of a healthy adult.
Like any patient at risk of a heart attack, … Read More →
