The FH Foundation is recruiting a team of volunteers to help raise money for rare disease research by taking part in University of Pennsylvania’s Million Dollar Bike Ride!
Homozygous Familial Hypercholesterolemia (HoFH) is a rare but severe form of the inherited cholesterol disorder Familial Hypercholesterolemia (FH). HoFH causes extremely elevated levels of LDL-cholesterol (“bad cholesterol”). This may lead to heart disease, heart attacks, and even death at a very young age. One in a million people have HoFH. Because individuals with this disorder are exposed to elevated cholesterol from birth, they may suffer from aggressive heart disease before they’ve even reached their teens.
There are several treatment options for adults with HoFH, but the therapies available for young children are limited. One of the most important things in treating this life-threatening disease is starting treatment as early as possible. Help us raise funds for research of more therapeutic options for children with HoFH!
Visit the FH Foundation’s Million Dollar Bike Ride for HoFH page (click here) or share it with your friends and loved ones! Our goal is $25,000 for research of pediatric treatments for children with Homozygous Familial Hypercholesterolemia!
Find our more about Rare Disease Cycling (click here).