Reflections on COVID-19 and familial hypercholesterolemia

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The world has shifted dramatically in the last few weeks to respond to coronavirus (COVID-19). We are working, home schooling, and keeping our families “safe at home.”


The mission of the FH Foundation – to save lives across generations – remains the same. Our work in familial hypercholesterolemia hinges on a deep belief that prevention is the worthiest investment for our collective future. Prevention relies on taking a threat seriously and acting as quickly as possible.


Several weeks ago, I made the decision to institute remote working for FH Foundation staff prior to “shelter in place” becoming widespread. Protecting the health and wellbeing of our employees is of the utmost importance so that we can continue to serve you.


These are overwhelming times for all of us. We know that many individuals with FH have heart disease and other underlying conditions, and are scared that it makes them more vulnerable to COVID-19. As a heart attack survivor and mother of a child with FH, I face these same fears and doubts, but believe that when individuals have access to current, credible information they make better choices.


It’s why our team rapidly mobilized to ensure that we are providing resources and support specific to FH, genetic lipid disorders and COVID-19 including holding a question and answer session with our chief medical officer. We fielded questions from the community on their concerns about FH treatments and worked with medical and public health experts, as well as our industry partners, to respond with answers.


We are grateful for your ongoing support and investment in our shared future. We are here for you, our FH Family – always.


Heartfelt regards,





Katherine Wilemon
Founder & CEO, The FH Foundation

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