How you can contribute to Familial Hypercholesterolemia Research
This webinar will help you understand what a patient registry is and the impact this research can have. Joining us will be the Cystic Fibrosis (CF) Foundation to share their experience with their registry and how it has changed the landscape for patients affected by CF. We will also share what the FH Foundation is learning from the national CASCADE FH® Registry and what you can do to contribute to the scientific understanding and improvement in care for Familial Hypercholesterolemia.
Join us on Tuesday, December 4 at:9:00 am PST/12:00 pm EST4:00 pm PST/7:00 pm EST
November 7, 2017
Pregnancy and FH
Women with FH face many treatment decisions and care options when planning for pregnancy. Hear from our expert, Dr. Gina Lundberg, Clinical Director of the Emory Women’s Heart Center, on considerations surrounding pregnancy, including treatment options, cholesterol questions, and pre- and post-natal care.
July 29, 2017
The FH Foundation® and the Patient Advocate Foundation have teamed up to help ensure you know what to do to access the care you need for Familial Hypercholesterolemia. This webinar will help you understand your insurance plan choices, where you might be able to save, how different FH treatments are covered by insurance, and what to do if you are denied approval for FH treatment by your insurance plan.
As reference, click for our Navigating Insurance Guide.
February 22, 2017
Living with Homozygous Familial Hypercholesterolemia
What is it like living with a rare disease?
Join four individuals as they share their perspectives on living with HoFH – the rare and most severe form of familial hypercholesterolemia.
February 6, 2017
Heart disease in the family
Join a father and daughter who are affected by inherited heart disease as they talk with Dr. Underberg about how familial hypercholesterolemia (FH) has impacted
their family over generations.
December 1, 2016
FH Treatments: What’s in Development?
This is Part 2 of a two part webinar on FH Treatments. There are more treatments in the pipeline for Familial Hypercholesterolemia. Dr. Dan Rader will help us understand the drugs that are currently in clinical trials and how they work.
December 1, 2016
Understanding FH Treatments
This is Part 1 of a two part webinar on FH Treatments. There are several treatments available to help individuals with FH manage their LDL cholesterol with the goal to lower the risk of heart disease. FH expert, Dr. Dan Rader, will help us understand these treatment options, how they work, who they are FDA approved for, and what kind of results we might expect.
August 24, 2016
Homozygous Familial Hypercholesterolemia
Learn about current developments in the understanding of HoFH and what is on the horizon for HoFH treatment from world renowned FH expert and the Chief Scientific Advisor to the FH Foundation, Dr. Dan Rader.
February 23, 2016
Familial Hypercholesterolemia & Heart Disease
Is your family affected by FH? Join our FH & Heart Disease webinar with Dr. Michael Shapiro to learn how familial hypercholesterolemia can lead to early heart disease and heart attacks. Tuesday, Feb 23 @ 5:00 PM PST
December 9, 2014
The Genetics of FH
Amy Sturm, MS, LGC, presents “The Genetics of FH” for FH Foundation Advocates for Awareness and Members. Don’t miss this exciting opportunity to learn more about FH and ask questions about how FH can affect your family.