March 24, 2021
Lipoprotein(a), or Lp(a), is an important genetic risk factor for heart attacks and strokes. Join us for our Lp(a) 101 webinar.Dr Mary McGowan, Chief Medical Officer of the FH Foundation, will present the latest guidance and answer your questions including:
– What is Lipoprotein(a)?
– What does high Lp(a) means for heart disease risk, including heart attacks and strokes?
– How is Lp(a) inherited?
– How can you get tested?
– What should you do if you or your family member has high Lp(a).
February 25, 2021
Living with Homozygous Familial Hypercholesterolemia Today
Managing high cholesterol, possible heart disease and juggling life are just a few of the challenges people face living with Homozygous Familial Hypercholesterolemia (HoFH) the most severe form of familial hypercholesterolemia. Yet, today there is more hope than ever with new treatments and scientific advances for both adults and children with HoFH.
Join Dr. P. Barton Duell, Director of Lipid-Atherosclerosis Laboratory and Sterols Analysis Laboratory and LDL Apheresis Unit at Oregon Health and Science University, and Dr. Lisa Hudgins, Associate Professor of Pediatrics in Medicine at the Rogosin Institute/Weill Cornell Medical College, as they share the latest research and new treatments on the horizon.
February 18, 2021
The (Post-COVID) Future of Heart Disease Prevention
What have we learned about COVID-19 and heart disease? What are your risks if you have familial hypercholesterolemia, elevated Lipoprotein(a) or other heart disease risk factors? What about the COVID-19 vaccine? Join Dr Larry Sperling, Katz Professor in Preventive Cardiology and Founder of the Emory Center for Heart Disease Prevention, and Katherine Wilemon, Founder and CEO of the FH Foundation to answer your questions and give you the latest science and guidance for COVID-19.
December 16, 2020
Cholesterol Control: How can diet and medication help?
In our latest webinar, Cholesterol Control: How can diet and medication help? , registered dietician Mary Card provides diet and nutrition tips and answers top questions. In addition, Dr. Mary McGowan explains how diet fits into an overall management plan for familial hypercholesterolemia and high cholesterol.
December 12, 2020
2020 FH Community Forum
On December 12, we went live for our first virtual FH Community Forum. In a moderated discussion led by Professor Amy Curry Sturm, Director of Genomic Counseling and Screening at Geisinger, individuals with FH and Homozygous FH shared their diverse perspectives to help us all understand what it’s like when FH runs in the family.
April 15, 2020
COVID-19 – New Updates: What you need to know
Join us for an FH Community Webinar with updates on what you need to know about COVID-19, FH, Lp(a), and Cardiac Risks. Hear from our Chief Medical Officer, Dr. Mary McGowan, and share your own questions and concerns. Click here to view slide presentation
March 25, 2020
Virtual FH Community Gathering – COVID-19 and FH: What you need to know
Hosted by the FH Foundation, this webinar features an FH Community Discussion with Dr. Mary McGowan, Chief Medical Officer, and Katherine Wilemon, Founder and CEO. Hear from the FH Foundation and the FH Community as they share their questions, concerns, and coping strategies with us and others living with FH. Click here to view slide presentation
February 29, 2020
Dr. Mary McGowan, Chief Medical Officer of the FH Foundation, will provide an overview of hypercholesterolemia (FH) and homozygous FH (HoFH). She will also discuss new treatments on the horizon.
December 4, 2018
How you can contribute to Familial Hypercholesterolemia Research
This webinar will help you understand what a patient registry is and the impact this research can have. Joining us will be the Cystic Fibrosis (CF) Foundation to share their experience with their registry and how it has changed the landscape for patients affected by CF. We will also share what the FH Foundation is learning from the national CASCADE FH®
Registry and what you can do to contribute to the scientific understanding and improvement in care for Familial Hypercholesterolemia.
November 7, 2017
Pregnancy and FH
Women with FH face many treatment decisions and care options when planning for pregnancy. Hear from our expert, Dr. Gina Lundberg, Clinical Director of the Emory Women’s Heart Center, on considerations surrounding pregnancy, including treatment options, cholesterol questions, and pre- and post-natal care.
July 29, 2017
The FH Foundation®
and the Patient Advocate Foundation have teamed up to help ensure you know what to do to access the care you need for Familial Hypercholesterolemia. This webinar will help you understand your insurance plan choices, where you might be able to save, how different FH treatments are covered by insurance, and what to do if you are denied approval for FH treatment by your insurance plan.
As reference, click for our Navigating Insurance Guide
February 22, 2017
Living with Homozygous Familial Hypercholesterolemia
What is it like living with a rare disease?
Join four individuals as they share their perspectives on living with HoFH – the rare and most severe form of familial hypercholesterolemia.
February 6, 2017
Heart disease in the family
Join a father and daughter who are affected by inherited heart disease as they talk with Dr. Underberg about how familial hypercholesterolemia (FH) has impacted
their family over generations.
December 1, 2016
FH Treatments: What’s in Development?
This is Part 2 of a two part webinar on FH Treatments. There are more treatments in the pipeline for Familial Hypercholesterolemia. Dr. Dan Rader will help us understand the drugs that are currently in clinical trials and how they work.
December 1, 2016
Understanding FH Treatments
This is Part 1 of a two part webinar on FH Treatments. There are several treatments available to help individuals with FH manage their LDL cholesterol with the goal to lower the risk of heart disease. FH expert, Dr. Dan Rader, will help us understand these treatment options, how they work, who they are FDA approved for, and what kind of results we might expect.
August 24, 2016
Homozygous Familial Hypercholesterolemia
Learn about current developments in the understanding of HoFH and what is on the horizon for HoFH treatment from world renowned FH expert and the Chief Scientific Advisor to the FH Foundation, Dr. Dan Rader.
February 23, 2016
Familial Hypercholesterolemia & Heart Disease
Is your family affected by FH? Join our FH & Heart Disease webinar with Dr. Michael Shapiro to learn how familial hypercholesterolemia can lead to early heart disease and heart attacks. Tuesday, Feb 23 @ 5:00 PM PST
December 9, 2014
The Genetics of FH
Amy Sturm, MS, LGC, presents “The Genetics of FH” for FH Foundation Advocates for Awareness and Members. Don’t miss this exciting opportunity to learn more about FH and ask questions about how FH can affect your family.